What We do
What We Do
HFA is governed by a Council of Delegates nominated by State/Territory Foundations in line with the Constitution. HFA Council meets annually for the purpose of establishing policy and setting the directions of the organisation. An Executive Board is elected by Council Delegates to oversight the operations. All Council members act in their roles in a voluntary capacity. The day to day operations of the Foundation are managed by a team of paid staff lead by the Executive Director and staff at a small rented office in
HFA operates as a not for profit organisation and its effectiveness is dependent upon the goodwill of many volunteers which includes people affected personally by bleeding disorders and representatives of governments, health sector and industry who may also contribute their skills, knowledge and time to achieve common goals.
HFA receives some Commonwealth government funding for secretariat activities and for some of the programs and activities undertaken to support the bleeding disorders community nationally. This government funding is negotiated and accounted for each year against agreed objectives. Most HFA operations however, are funded by donations from individuals, trusts and companies which choose to support the Foundation.
The first haemophilia society formed in
An expansion program lead to the formation of societies and support groups in
Much of HFA’s early work was directed towards lobbying for improved treatment facilities, blood product supplies and counselling services. A great deal has been achieved.
In the mid 1980’s the incidence of HIV infection through the use of contaminated blood products led to initial government grants for the education and support of people with haemophilia infected with HIV, and their families. In the early 1990’s it was also known that hepatitis C had contaminated blood products and many people who used these products for their treatment had been infected and developed chronic hepatitis C.
HFA worked with member foundations to ensure treatment and support was available and over the years efforts were concentrated on ensuring access to adequate supplies of safer treatment products for all people with bleeding disorders around .
NATIONAL PATRON ~ The Right Honourable Sir Ninian Stephen, KG, AK, GCMG, GCVO, KBE.
AUSTRALIAN CAPITAL TERRITORY Dr Richard G Pembrey, AM, MBBS, MD, FRACP, FRCPA
WESTERN AUSTRALIA Mr Michael McCusker, AC, CVO, QC, Governor of Western Australia
NEW SOUTH WALES Dr. Kevin A. Rickard, AM, RFD.
VICTORIA The Honourable Alex Chernov, AC, QC, Governor of Victoria
TASMANIA Lady Green
SOUTH AUSTRALIA Doctor Donald Handley, MBBS., FRACP., FRCPA.
QUEENSLAND Her Excellency Ms Penelope Wensley, AO. Governor of Queensland