Clinical or treatment research
Clinical research studies, such as clinical trials, are ways of testing how well treatments work and how safe they are. They usually observe the effect of new treatments or new ways of using known treatments on humans. A new drug treatment will need to pass several stages of testing before it can be made available more widely.
Clinical trials often need large numbers of people to produce meaningful results. Because bleeding disorders are rare, clinical trials researching treatments for bleeding disorders may involve people both in Australia and overseas.
Current Australian research studies
Ask your Haemophilia Centre for information on any current studies
Participating in clinical research
Although information on specific clinical trials is listed on this web site for your information, this is not an endorsement of the research study by HFA.
Participating in a clinical trial is voluntary. Before you take part in a clinical trial, make sure you are satisfied that the study will be in your interests and that your health and privacy will be protected. All Australian clinical trials must follow the guidelines made by the National Health & Medical Research Council and must have approval from a registered Human Research Ethics Committee.
If you have concerns about a research project, you can make a complaint to the Human Research Ethics Committee that approved the study.
These web sites have more information on what clinical trials are and how they work:
Clinical trials – myDr
Clinical trials – National Breast and Ovarian Cancer Centre
Clinical trials - NAPWA
Oranges and lemons: understanding clinical trials – NAPWA
Human research ethics committees – Better Health Channel