Social and other research
Social, psychological and other health research
Social, psychological and multidisciplinary research often asks questions about a person’s experiences to explore ways to improve people’s health or wellbeing. Multidisciplinary research may look at several different aspects of a person’s life to get a broader perspective, for example, their physical health, social and personal life, how they feel emotionally.
Health services research assesses how well health services work for people and people’s preferences for different types and styles of services.
Some of these research projects will study large numbers of people, while others will undertake in-depth research with small numbers of people.
Current international research studies
Hemophilia wellbeing international survey (Universidad Autonoma de Madrid, Spain) - a survey on people with haemophilia's perception of "wellbeing"
Haemophilia specific research
MOrPH (Modelling Optimal Prophylaxis in Haemophilia) study (Neuroscience Research Australia, The Children’s Hospital at Westmead, The George Institute for Global Health, the Royal Children’s Hospital, Melbourne) - surveys for young people 14-18 years and parents of children on prophylaxis for haemophilia to find out what they consider to be acceptable prophylactic schedules.
HIV or hepatitis C specific research
You me and HIV (National Centre for HIV Social Research - NSW only) - interviews with couples where one is HIV positive and the other negative to understand the needs of couples
Ask your Haemophilia Centre for information on any other current studies
Participating in research
Although information on specific research studies is listed on this web site for your information, this is not an endorsement of the research study by HFA.
Participating in a research study is voluntary. Before you take part in a research study, make sure you are satisfied that the study will be in your interests and that your health and privacy will be protected. All Australian human research projects must follow the guidelines made by the National Health & Medical Research Council and must have approval from a recognised Human Research Ethics Committee.
If you have concerns about a research project, you can make a complaint to the Human Research Ethics Committee that approved the study.