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Frequently Asked Questions & Facts - Fast Facts

Last reviewed: September 2013

Haemophilia

  • Haemophilia occurs in 1 in 6,000-10,000 males internationally.
  • Currently in Australia there are more than 2,800 people with varied degrees of severity.
  • There are 2 types of haemophilia:
    Haemophilia A (classical haemophilia) is the most common type and caused when there is not enough clotting factor VIII in the blood.
    Haemophilia B (Christmas Disease) occurs when there is not enough clotting factor IX in the blood .
  • Bleeding is most commonly internal into the joints and/or muscles. It can happen without an obvious cause (sometimes called ‘spontaneous’), or as a result of injury.
  • Over time this internal bleeding ('bleeds') can cause severe arthritis, chronic pain and disability.
  • Specialised treatment is needed to help blood clot normally. With appropriate treatment haemophilia can be managed effectively.
  • Haemophilia is an inherited condition and occurs in families, however in 1/3 of cases it appears in families with no previous history of the disorder. The genetic alteration cauising haemophilia is passed down from parent to child through generations. Men with haemophilia will pass the gene on to their daughters but not their sons. Women who carry the gene can pass the gene on to their sons and daughters. Sons with the gene will have haemophilia. Some women and girls who carry the gene may also experience bleeding problems.


Von Willebrand disorder

  • Von Willebrand disorder (VWD) is a related bleeding disorder which affects both men and women. This disorder is caused by when there is not enough von Willebrand factor in the blood or it does not work the way it should. It takes longer for blood to clot and for bleeding to stop.
Last Updated: 9th Oct 13