HFA Women's Project

HFA Women's Project

Our consultation with Australian women with bleeding disorders has highlighted how important it is for women to connect with each other by sharing their stories and realising that they are not alone in their experiences – and that having a bleeding disorder is something that can be talked about.

HFA is going ahead with its work on resources specifically for women, which will include personal stories and information answering women’s questions.

There will be two new resources:

  • Carrying the haemophilia gene
  • Living with bleeding symptoms (haemophilia, VWD and other rare disorders)

How to be involved?
If you are an Australian woman and have VWD, carry the gene or have bleeding symptoms and are interested in being involved, you can:

  • Participate in the HFA women’s resources review group. This involves contributing ideas on what should go in the resources, reading over drafts of the resources and giving your comments
  • Tell your story and have it included in the new resource (and National Haemophilia) – it can be anonymous if you prefer – and you can write your story yourself or be interviewed over the phone.

If you would like to be involved, please contact Suzanne O’Callaghan, Policy Research and Education Manager, Haemophilia Foundation Australia:

socallaghan@haemophilia.org.au
Phone 1800 807 173

Information for young women and teenage girls
Alongside the women’s project, HFA has also started working on information resources for young women and teenage girls in the 13-25 age group.

The style and topics covered will be developed with young women and teenage girls with bleeding disorders, and parents and Haemophilia Centres will also be asked for input.

This project is being led by Hannah Opeskin, HFA Health Promotion Officer. Contact Hannah if you are interested in being involved or have any questions:

hopeskin@haemophilia.org.au

phone: 1800 807 173 (Mon, Tue, Fri)

Last Updated: 30th Sep 14