Haemophilia Foundation Australia

Hep C Resources

Selected resources including high quality and relevant information for Australians with bleeding disorders affected by hepatitis C:

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Hepatitis C and Bleeding Disorders

Hepatitis C: information for people with bleeding disorders, no. 1 [PDF, 348 KB] - the latest information on tests, treatments, looking after your health, transmission, telling people about hepatitis C and financial issues (HFA, Feb 2007)
Summary - Hepatitis C: information for people with bleeding disorders - [PDF, 49KB]
Understanding your hepatitis C test results (html) - print version [PDF, 37KB] (HFA, May 2008)
Hepatitis C treatment snapshot (html) - print version [PDF, 36KB] - update on treatments (HFA, May 2008)
My choice to tell - at work (html) - print version [PDF, 218KB] - Advice on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
My choice to tell - family, friends, new partners (html) - print version [PDF, 232KB] - Discussion about the questions that come up when disclosing to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)

Read about the experiences and personal stories of people with bleeding disorders and hepatitis C in Australia:

Personal stories - contributed for HFA web site
Summary - "A double whammy" report - revised [PDF, 149KB] (HFA, Jan 2008) - summary of HFA needs assessment, including quotes and stories
Full Report - “A double whammy”: living with a bleeding disorder and hepatitis C [PDF,718KB] – HFA needs assessment report that includes quotes and stories from people with bleeding disorders affected by hepatitis C and recommendations for the HFA hepatitis C strategy (HFA, Oct 2007)

Hepatitis C

Hepatitis C (html)– general information about hepatitis C for adult Australians (Hepatitis Australia)
What is hep C? [PDF, 1MB] - FAQ on hepatitis C for young people (Hepatitis C Council of NSW, 2009)
Hepatitis C: a brief introduction [PDF, 500KB] - an introduction to hepatitis C for people with hepatitis C (Hepatitis C Council of NSW, 2009)
What you need to know: a guide to hepatitis C [PDF, 2MB] - a comprehensive guide for people affected by hepatitis C (Hepatitis C Council of NSW, 2009)
Contact [PDF, 932KB) - for people with hepatitis C who need more information about how hepatitis C may affect their health and their lifestyle (Hepatitis Australia, 2007)
You and hep C (html)– more detailed information on hepatitis C in Australia, symptoms, transmission, testing and treatments (Hepatitis C Victoria)

Hepatitis C magazines/cartoons

Transmission - a cartoon-style magazine with stories and information about hepatitis (Hepatitis NSW)

Hepatitis C/HIV co-infection

Hepatitis C & HIV coinfection [PDF, 190KB] – a factsheet on HIV and hepatitis C co-infection with answers to frequently asked questions, including taking care of your liver health and treatment options (Hepatitis C Council of NSW, 2005)
Treataware (html) - a searchable web site on Australian clinical trials of HIV treatments, including treatment for co-infection (National Association of People Living With HIV/AIDS, Australia; AIDS Treatment Project Australia)
HIV Futures 6 survey (html) - survey of about all aspects of living with HIV in Australia. (Australian Research Centre in Sex, Health and Society, La Trobe University)

Living with hepatitis C

Living with hepatitis C (html) – introductory information on living well, including telling others, maintaining your health, preventing transmission and women’s issues (Hepatitis Australia)
Living with Cirrhosis [PDF, 294KB] - for people who have hepatitis C-related cirrhosis with information about managing your health and preventing further liver disease (Hepatitis Australia, 2007)
Hepatitis C and food [PDF, 980KB] - an introduction to healthy eating and hepatitis C (Hepatitis C Council of NSW, 2003)
HCV Advocate (html) – an informative hepatitis C web site based in San Francisco. Includes the latest on treatments and living well with regular updates in its monthly newsletter.
- Use the HCV Advocate news feed to stay up-to-date: http://www.hcvadvocate.org/Feeds/HepCNews.xml

Internet discussion groups

Hep C Australasia (html) - an Australian and New Zealand online peer support forum for people affected by hepatitis C, their family and their friends.

Telling others

My choice to tell - at work (html) - print version [PDF, 218KB] - Advice for people with bleeding disorders on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
My choice to tell - family, friends, new partners (html) - print version [PDF, 232KB] - Discussion about the questions that come up when people with bleeding disorders disclose hepatitis C to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)
My Choice to Tell [PDF, 629KB] - information to help you make decisions that are right for you about telling others (Australian Hepatitis Council, 2003).

Hep C tests

Understanding your hepatitis C test results (html) - print version [PDF, 37KB] (HFA, May 2008)

Treatment

Hepatitis C retreatment news - pegylated interferon and ribavirin is now available on the PBS for retreatment - click here for more

Hepatitis C treatment snapshot (html) - print version [PDF, 36KB] - update on treatments for people with bleeding disorders (HFA, May 2008)
Hepatitis C Treatment (html) - details of pegylated interferon and ribavirin treatment for people considering treatment (Hepatitis C Council of WA)
Thinking about Treatment [PDF, 320KB] – a useful resource for people with hepatitis C thinking about medical treatment, with information on what treatments are available, their side effects, and how to access treatment. Includes questions to ask your doctor. (Hepatitis Australia, 2004)
Treat yourself right (under Downloads)- practical strategies and information for people who are starting treatment for hepatitis C (Hepatitis C Council of SA, 2004)
Moving on After Treatment [PDF, 171KB] - information for people after they've had antiviral treatment for hepatitis C. (Hepatitis Australia, 2002)

Discrimination

My Rights [PDF, 457KB] - Everyone has the right to be treated fairly and with respect. This provides information on how to complain if you think you have been discriminated against. (Hepatitis Australia, 2003)

Finances

Superannuation and insurance for people with bleeding disorders and hepatitis C, national edition (September 2007) - John Berrill, Maurice Blackburn Cashman

Australian Hepatitis Organisations

National and state/territory hepatitis organisations provide support and high quality information on hepatitis C :

NB We provide these links as a service to the haemophilia community. As web sites can change or should you find a site to be no longer active please notify hfaust@haemophilia.org.au. Haemophilia Foundation Australia is not responsible for the content of any external web sites. The featuring of a site on this page is not an endorsement by HFA of the information or views expressed therein.

Last Updated: May 11, 2010