Haemophilia Foundation Australia

Hep C Resources

Selected resources including high quality and relevant information for Australians with bleeding disorders affected by hepatitis C:

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Hepatitis C and Bleeding Disorders

• Hepatitis C: information for people with bleeding disorders, no. 1 [PDF, 348 KB] - the latest information on tests, treatments, looking after your health, transmission, telling people about hepatitis C and financial issues (HFA, Feb 2007)
• Summary - Hepatitis C: information for people with bleeding disorders - [PDF, 49KB]
• Understanding your hepatitis C test results (html) - print version [PDF, 37KB] (HFA, May 2008)
• Hepatitis C treatment snapshot (html) - print version [PDF, 36KB] - update on treatments (HFA, May 2008)
• My choice to tell - at work (html) - print version [PDF, 218KB] - Advice on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
• My choice to tell - family, friends, new partners (html) - print version [PDF, 232KB] - Discussion about the questions that come up when disclosing to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)

Read about the experiences and personal stories of people with bleeding disorders and hepatitis C in Australia:

• Hepatitis C - my story - the personal stories of Australians with haemophilia and hepatitis C
• Summary - "A double whammy" report - revised [PDF, 149KB] (HFA, Jan 2008) - summary of HFA needs assessment, including quotes and stories
• Full Report - “A double whammy”: living with a bleeding disorder and hepatitis C [PDF,718KB] – HFA needs assessment report that includes quotes and stories from people with bleeding disorders affected by hepatitis C and recommendations for the HFA hepatitis C strategy (HFA, Oct 2007)

Hepatitis C

• Hepatitis C (html)– general information about hepatitis C for adult Australians (Hepatitis Australia)
• What is hep C? [PDF, 1MB] - FAQ on hepatitis C for young people (Hepatitis C Council of NSW, 2009)
• Hepatitis C: a brief introduction [PDF, 500KB] - an introduction to hepatitis C for people with hepatitis C (Hepatitis C Council of NSW, 2009)
• What you need to know: a guide to hepatitis C [PDF, 4MB] - a comprehensive guide for people affected by hepatitis C (Hepatitis C Council of NSW, 2009)
• What is hepatitis C? (html)– more detailed information on hepatitis C in Australia, symptoms, transmission, testing, treatments and living well (Hepatitis C Victoria)

Hepatitis C magazines/cartoons

• Transmission - a cartoon-style magazine with stories and information about hepatitis (Hepatitis NSW)

Hepatitis C/HIV co-infection

• HIV & hepatitis A, B & C - fact sheet for people who are co-infected with HIV and hepatitis A, B or C with brief information on about how co-infection works in the body, treatment and transmission (National Association of People Living With HIV/AIDS, Australia, 2010)
• Hepatitis C & HIV coinfection [PDF, 190KB] – a factsheet on HIV and hepatitis C co-infection with answers to frequently asked questions, including taking care of your liver health and treatment options (Hepatitis C Council of NSW, 2010)
• Treataware - a searchable web site on Australian clinical trials of HIV treatments, including treatment for co-infection (National Association of People Living With HIV/AIDS, Australia; AIDS Treatment Project Australia)

Living with hepatitis C

• Living with hepatitis C – introductory information on living well, including telling others, maintaining your health, preventing transmission and women’s issues (Hepatitis Australia)
• Hepatitis C: guide to healthy living - managing your diet and using complementary and alternative therapies (Hepatitis Australia, 2010)
• Living with Cirrhosis [Large file - PDF, 8.112MB] - for people who have hepatitis C-related cirrhosis with information about managing your health and preventing further liver disease (Hepatitis Australia, 2013)
• Hepatitis C and food [PDF, 980KB] - an introduction to healthy eating and hepatitis C (Hepatitis C Council of NSW, 2003)
• HCV Advocate (html) – an informative hepatitis C web site based in San Francisco. Includes the latest on treatments and living well with regular updates in its monthly newsletter.

Internet discussion groups

• Hep C Australasia (html) - an Australian and New Zealand online peer support forum for people affected by hepatitis C, their family and their friends.

Telling others

• My choice to tell - at work (html) - print version [PDF, 218KB] - Advice for people with bleeding disorders on workplace issues including when you need to tell people, work safety and privacy. Tips on ways to tell people. (HFA, May 2009)
• My choice to tell - family, friends, new partners (html) - print version [PDF, 232KB] - Discussion about the questions that come up when people with bleeding disorders disclose hepatitis C to family, friends and new partners: what might their reaction be, tips on how to prepare to tell them, conversation starters, telling new partners or children (HFA, May 2009)
• My Choice, My Rights: Disclosure, anti-discrimination and health complaints information for people with hepatitis C [PDF, 3.6MB] - information to help you make decisions that are right for you about telling others (Hepatitis Australia, 2010).

Hep C tests

• Understanding your hepatitis C test results (html) - print version [PDF, 37KB] (HFA, May 2008)

See the ASHM web site for medical information about hepatitis C tests.

Treatment

• Hepatitis C treatment snapshot (html) - print version [PDF, 36KB] - update on treatments for people with bleeding disorders (HFA, May 2008)
• Two hep C questions: What will happen to me? Should I go on treatment? [PDF, 4MB] - a guide to what might happen healthwise with long term hep C; treatment; how best to care for your liver (Hepatitis NSW, 2012)
• Hepatitis C: treat it, beat it [PDF, 1.9MB] - information to help prepare for treatment for hep C (Hepatitis Australia, 2010)
• Hepatitis C Treatment (html) - details of pegylated interferon and ribavirin treatment for people considering treatment (Hepatitis C Council of WA)

Personal stories

• Treatment, life, hep C and me [PDF, 1.5MB] - 12 people who have had conventional hepatitis C therapy tell the story of their experience (Hepatitis Australia, 2009)

See the ASHM web site for medical information about hepatitis C treatment

Discrimination

• My Choice, My Rights: Disclosure, anti-discrimination and health complaints information for people with hepatitis C [PDF, 3.6MB] - Everyone has the right to be treated fairly and with respect. This provides information on how to complain if you think you have been discriminated against. (Hepatitis Australia, 2010)

Finances

• Superannuation and insurance for people with bleeding disorders and hepatitis C, national edition (September 2007) - John Berrill, Maurice Blackburn Cashman

Australian Hepatitis Organisations

National and state/territory hepatitis organisations provide support and high quality information on hepatitis C :

• Hepatitis Australia
• ACT Hepatitis Resource Centre
• Hepatitis NSW
• NTAHC (Northern Territory AIDS and Hepatitis Council)
• Hepatitis Queensland
• Hepatitis SA
• Hep in Tas - TasCAHRD (Tasmanian Council on AIDS, Hepatitis & Related Diseases)
• Hepatitis Victoria
• Hepatitis WA
• ASHM – peak Australasian organisation providing information and education on hepatitis C to the workforce

NB We provide these links as a service to the haemophilia community. As web sites can change or should you find a site to be no longer active please notify hfaust@haemophilia.org.au. Haemophilia Foundation Australia is not responsible for the content of any external web sites. The featuring of a site on this page is not an endorsement by HFA of the information or views expressed therein.