Presentations

Presentations

Presentations from the 15th Australian & New Zealand Haemophilia Conference in Brisbane 2009 are available for download. For a full listing, view the program (download below) or following is a summary:

Friday 9 October 2009
Plenary 1

Assessing the impact of chronic disease on adolescents - a practical psychological paradigm
~ Dr Michael Carr-Gregg
Chair: Maurren Spilsbury

Concurrent 1 (am)
Family factors: challenges & solutions

Chair: Kelly Brady
Parents Empowering Parents (PEP) ~ Anne Jackson/Sharon Hawkins/ Cheryl Ellis
Moving on: preparing for transition to adult life ~ Margaret Rae
Venous access and ports ~ Helen Starosta

Concurrent 2 (am)
Product safety

Chair: Rob Christie
UK vCJD experience ~ Dr Paula Bolton-Maggs
vCJD risk and product safety ~ Prof Albert Farrugia

Concurrent 3 (am)
von Willebrand Disorder

Chair: Dr James Daly
AHCDO Guidelines ~ Dr James Daly
Pathology and treatment ~ Dr Jeremy Robertson
Living with vWD
~ Lorraine Porter- Bishop
~ Lauren Winders

Concurrent 1 (pm)
Women’s issues

Chair: Belinda Burnett
Women’s issues – an overview and introduction ~ Belinda Burnett
My journey with haemophilia B ~ Justine Mamootil
Menorrhagia, pregnancy and delivery ~ Dr Paula Bolton-Maggs

Concurrent 2
Treatment and management of inhibitors

Chair: Dr Chris Barnes
Codey’s personal experience
Risk factors for inhibitor development ~ Dr Simon Brown
Caring for people with inhibitors ~ Dr Chris Barnes

Concurrent 3
Haemophilia across the continuum

Chair: Penny McCarthy
Haemophilia-talking 'bout your generation ~ Penny McCarthy
Maintaining health and independence, living with arthritis ~ Jann Anderssen
Haemophilia and the added health benefits from general practice care ~ A/Prof Jane Smith
Health issues for an ageing haemophilia population ~ Dr Huyen Tran

Plenary 2
Good joints for a better life

Chair: Wendy Poulsen
The benefits of physiotherapy-exercise and fitness, maintaining healthy joints, optimising prophylaxis ~ Kathy Mulder
Understanding rheumatology - inflammatory processes, MRI’s and radiosynovectomy ~ Dr David Kandiah
Orthopaedic problems and solutions ~ Dr Brett Halliday
Questions and discussion

Saturday 10 October 2009

Plenary 3
The importance of comprehensive care for patients, families, health professionals and the health care system - meeting the challenges

Chair: Kathy Mulder
A perspective of a young family ~ Helen Fogarty
A perspective of an adult with haemophilia ~ Mike O’Reilly
Using clinical data, evidence and experience – the benefits of benchmarking ~ Dr Chris Barnes
History of comprehensive care and current best practice ~ Dr John Rowell
Physiotherapy - an overview ~ Debbie Thompson
Nurse – an overview ~ Janine Furmedge
Social Worker – an overview ~ Maureen Spilsbury

Concurrent 1 (am)
Understanding genetics and reproductive choices

Chair: Dr John Rowell
An overview of genetics ~ Dr John Rowell
How genetic counselling can help ~ Katherine Rose
PreImplantation genetic diagnosis and assisted reproductive technology in haemophilia ~ Dr Penelope Foster
A carrier’s journey~ Jane Devlin

Concurrent 2 (am)
Living with hepatitis C

Chair: Suzanne O’Callaghan
Personal reflections on living with hepatitis C, treatment and support ~ Mark Ivory
Update on hep C, treatment, care and future directions ~ Dr Greg Dore
Decisions about hepatitis C treatment and resilience during treatment ~ A/Prof Carla Treloar
Dealing with your mental health - managing hep C symptoms and treatment ~ Dr Paul Pun

Concurrent 3 (am)
Free Papers

Chair: Beryl Zeissink
The HFNZ community needs assessment: preliminary findings, preliminary findings ~ Chantal Lauzon
A retrospective audit of yttrium synovectomies at The Alfred ~ Dr Anne Powell
The psoas muscle and sexual health ~ Matthew Stewart
30 years’ experience of joint replacements in patients with bleeding disorders in SA ~ Dr Lay Tay
Outcomes after joint arthroplasty or arthrodesis at an Australian Haemophilia Centre ~ Dr Kemble Wang

Concurrent 1 (pm)
Good dental care for adults and children with bleeding disorders

Chair: Dr James Daly
Dental care & health in Adults ~ Dr Ian Hewson
The Great Australian Bite ~ Dr Kerrod Hallett
A personal experience ~ Paul Bonner

Concurrent 2 (pm)
Living with HIV

Chair: Alex Coombs
Psycho-social aspects of disclosure ~ Alex Coombs
Personal reflections ~ Matt Powell
HIV in 2009 means viral suppression for all. New opportunities and new challenges ~ Dr Mark Kelly
Positively addressing personal barriers- lets talk about…. sex, disclosure & relationships ~ Georgia Ash

Concurrent 3
Practical Living

Chair: Leonie Mudge
Superannuation & insurance (Travel & income protection) ~ John Berrill
Income support/financial assistance ~ Leonie Mudge
Career and employment: challenges and choices panel
~ Mike Holloway, Luke Chipperfield, Robert McCabe

Plenary 4
Haemophilia care and treatment– where have we come from, and where are we going?

Chair: Deon York
History of haemophilia care, new treatments, treatment needs in the developing world ~ Dr Paula Bolton-Maggs
Gene therapy for haemophilia: what's the holdup? ~ Prof John Rasko
Trends in treatment product use and expenditure in Australia ~ Dr Alison Turner
Ethics, cost and sustainability- the future horizon ~ Deon York

Men's & Women's Breakfast
Men’s Breakfast

Chair: Matthew Stewart
Speaker: Steve Manning - “Fitness and its benefits”
Women’s Breakfast
Chair: Sharon Caris
Speaker: Kathy Mulder - “Amazing Mothers”

Last Updated: 19th Oct 10