World Haemophilia Day 2013
The bleeding disorders community marks 50 Years of Advancing Treatment for All on World Haemophilia Day.
On World Haemophilia Day, April 17, 2013, the global bleeding disorders community will come together to mark 50 years of advancing the cause for treatment and care for all people with haemophilia and other inherited bleeding disorders.
However, the stark reality still remains that 75 per cent of these people still receive very inadequate treatment or no treatment at all. This percentage is even higher for those with von Willebrand disorder and rare factor deficiencies.
World Haemophilia Day provides the global bleeding disorders community with the opportunity to raise awareness about where we have been, where we want to go, and that together, we can close the gap in care.
“One of the greatest benefits of participating in World Hemophilia Day is the recognition that our community is more powerful when we work together,” said Alain Weill, World Federation of Hemophilia (WFH) President. “People from around the world will mark this day and raise awareness about the need to achieve Treatment for All.”
What will it take to Close the Gap?
An estimated 6.9 million people are living with a bleeding disorder. Of these, 75 per cent remain undiagnosed and receive inadequate care or no care at all.
Since 1963, the WFH has worked to improve and sustain care for people with bleeding disorders around the world. The results are remarkable:
•240,000 patients have been identified
•5 per cent increase in the number of children with bleeding disorders surviving into adulthood in developing countries in six years (from 2002 to 2008)
•over 225 per cent increase in the availability of treatment products since 2001
•national care programs established in 16 countries through the Global Alliance for Progress (GAP) Program, 13 of these with official memoranda of understanding signed between the WFH and the national government
•WFH mission is carried out in more than 100 countries globally
Yet there are still vast unmet needs.
You can donate online to Close the Gap - https://www.wfh.org/en/sslpage.aspx?pid=466
During the week, WFH is asking National Member Organisations and the community to share hopes and wishes for the next 50 years through a video message or post on their facebook page - www.facebook.com/wfhemophilia.
Join the international bleeding disorders community on April 17 to mark World Haemophilia Day. Together, we can close the gap in care. For more information on World Haemophilia Day visit www.wfh.org/whd.
- Close the Gap Flyer (217Kb)