Presentations & Abstract Book

Conference Abstract book - download here

Friday 21 October 2011

Plenary 1
How a happier body can lead to a happier mind - Anna Louise Bouvier

Concurrent 1 am
Keeping the body in tune - children
Chair: Wendy Poulsen

Managing diet – dealing with fussy eaters – Dr Jacqui Dalby-Payne
Risk of bleeds associated with physical activity in children with haemophilia - Dr Carolyn Broderick
Personal Experience – Chris Gordon

Concurrent 2 am
Staying on your feet – a session for adults of all ages
Chair: Dr Huyen Tran

Saving the Ankle Joint – Dr Sanjeev Gupta
Haemophiliac joints in children: can we preserve them from damage? - A/Prof Prudence Manners & Dr Anne Powell
Staying on your feet – a session for adults of all ages - Emma Paterson

Concurrent 3 am
Von Willebrand Disorder
Chair: Dr Susan Russell

A personal story of a family affected by VWD – Manal Awad
VWD – clinical update on treatment and care – Dr Mandy Davis
Diagnosis and classification of VWD –Dr Emmanuel Favaloro

Concurrent 1 pm
Keeping the mind and body in tune - adults
Chair: Andrew Atkins

Obesity/weight management: clinical issues - Dr Anne Powell
Personal experiences: Andrew Selvaggi and Zev Fishman will share their inspiring stories of overcoming some of the complications of haemophilia
Creating flourishing lives: putting positive psychology into practice – Nicola Gates

Concurrent 2 pm
Women’s health and reproduction
Chair: Belinda Burnett

IVF and embryo diagnosis – Dr Kristi Jones
Managing menorrhagia - Dr Claire McLintock
HFNZ Women’s Program – Lynne Campbell

Concurrent 3 pm
Transitions: becoming an adult
Chair: Maureen Spilsbury

Transitioning in Queensland: From Teddy Bears to Apprenticeships! – Maureen Spilsbury & Dr Desdemona Chong
WA Transition program - Presented by Haemophilia Counsellor – Sharon Hawkins and William Oversby
A panel of young people and professionals will discuss their experiences of youth transition

Plenary 2
Chair: Zev Fishman

Haemophilia and Ageing – Dr Mike Makris
Followed by multidisciplinary panel: Leonie Mudge (Social Worker), Ian dYoung (Physiotherapist), Stephen Mathews (Nurse)

Saturday 22 October 2011

Plenary 3
Treatment challenges
Chair: Dr Scott Dunkley

Safety of current products used to treat inherited bleeding disorders – Dr Mike Makris
Current and emerging challenges, risk factors for inhibitor development – Dr Julie Curtin
Update from the AHCDO Tolerisation Advisory Committee – Dr Chris Barnes

Inhibitors in mild haemophilia – Dr Simon McRae

A personal experience of tolerisation – Hamish Robinson

Concurrent 1 am
Men’s Business
Chair: Sharon Hawkins
Facilitator: Greg Millan

What’s normal? – across the lifespan - Greg Millan
Enjoying your sex life: Issues and solutions for men with physical impairment – Dr Tinashe Dune
Panel – Q&A
Haemophilia physiotherapist – Cameron Cramey
Haemophilia nurse – Clare Waite
Haemophilia Counsellor - Sharon Hawkins
BBV’s , and body image - Dr Roger Garsia

Concurrent 2 am
The challenges of prophylaxis
Chair: Ian d’Young

Clinical update on prophylaxis – Dr Alessandro Gringeri
Delivery of Prophylactic Factor to Children with Severe Haemophilia: the challenge of venous access
– Dr Susan Russell & Robyn Shoemark

Joint health for children and adolescents: Prophylaxis is not the only answer – Ian d’Young

Concurrent 3 am
The rarer bleeding disorders
Chair: Grainne Dunn

A personal story by a mother of a child with severe factor XI deficiency – Nadine Penn
Nursing perspectives – 3 nurses will present snapshots of their experiences of looking after patients with rare bleeding disorders and the nursing issues that arise:
•Acquired haemophilia - Andrew Atkins
Afibrinogenaemia - Olivia Hollingdrake
Glanzmann’s- Penny McCarthy
Factor X deficiency - Dr James Price
Platelet function disorders – Dr Tim Brighton

Concurrent 1 pm
Living with hepatitis C and/or HIV co-infection
Chair: Megan Walsh

From a patient’s perspective – Luke Ahern
Medical update on HIV co-infection including reproduction for HIV discordant couples – Dr Roger Garsia
Update on hepatitis C and treatment – A/Prof Simone Strasser
Managing symptoms and liver health – Anne Glass

Concurrent 2 pm
Caring for parents and carers
Chair: Dr Desdemona Chong

Taming the Stress Dragon - Dr Desdemona Chong
Empowering Parents!
PEP in Australia - Anne Jackson
Re-PEP in New Zealand – an opportunity to review, re-visit, reflect and refresh - Colleen McKay
•The benefits from a Mother’s perspective - Lynley Scott
•The benefits from a Father’s perspective - Richard Scott
Caring for Carers across the spectrum - Elena Katrakis

Concurrent 3 pm
Communication and Social media
Chair: Jonathan Spencer

Social networking – community perspectives and issues to consider for community organisations – Suzanne O’Callaghan
Can you Care too Much? Maintaining the Delicate Balance of Professional Boundaries in a New Age – Lyn Biviano & Natasha Samy
Privacy and reputation management in the digital space – Melissa Sevil

Plenary 4
Treatment and care – now and the future
Chair: Geoff Simon

What are some of the issues? – Geoff Simon
Expectations from a community perspective – Deon York
Optimising supply and demand for clotting factors – Stephanie Gunn
The future of haemophilia care – a personal view - Dr Mike Makris

Last Updated: 23rd Mar 16