Haemophilia resources

Publications

Fact Sheet 1 - Haemophilia - revised May 2006
Introduction to haemophilia, who it affects, symptoms, treatment.
Download PDF/print version - 85KB

Haemophilia fact sheet

Haemophilia - revised 2009
A general overview of haemophilia including diagrams showing genetic inheritance and how bleeding occurs in haemophilia along with tips on living well.
Download PDF/print version - 1.6MB

Haemophilia booklet

Living with mild haemophilia: a guide - October 2011
A comprehensive guide to living with mild haemophilia, including diagnosis, genetic inheritance and planning a family, treatment and care, special issues for girls and women and information on living well.
Download full PDF/print version - 2.95MB

Mild haemophilia booklet

Download sections

The management of haemophilia - revised 1995 - This booklet is under review.
Haemophilia is not the same in all persons. A description of bleeding types, treatments, diet, dental care, exercise, pain relief, treatment types, infection, home therapy and more.
Download PDF/print version - 1.92MB

Management of haemophilia booklet

The student with haemophilia - revised 1995 - This booklet is under review
Invaluable practical information for anyone dealing with a student with haemophilia.
Download PDF/print version - 1.72MB

Student with haemophilia booklet
Living with an inhibitor - 1999 - This booklet is under review
A valuable resource for those living with inhibitors, including a useful section on self-management.
Download PDF/print version - 5.61MB
Living with an inhibitor booklet
I've got an inhibitor - 1999
A colouring book for children with haemophilia and inhibitors, this resource aims to inform children of their condition and provides pain management techniques to manage it.
Download PDF/print version - 3.15MB
I've got an inhibitor colouring book
Preventing a joint bleed - a parent's guide to the prophylactic treatment of haemophilia - 2000
The history of prophylaxis, advantages, disadvantages, techniques, case studies.
Download PDF/print version - 1.99MB
Preventing a joint bleed booklet

Giving Tom His Prophylaxis - 2000
A practical and entertaining colouring and puzzle book dealing with prophylaxis, ideal for the younger child.
Download PDF/print version - 3.96MB

Giving tom his prophylaxis colouring book


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Last Updated: May 10, 2012