Haemophilia resources


Fact Sheet 1 - Haemophilia - revised May 2006
Introduction to haemophilia, who it affects, symptoms, treatment.
Download PDF/print version - 85KB

Haemophilia fact sheet

Haemophilia - revised 2013
A general overview of haemophilia including diagrams showing genetic inheritance and how bleeding occurs in haemophilia along with information about carrying the gene and tips on living well.
Download PDF/print version - 1.7MB

Haemophilia booklet

Mild haemophilia fact sheet - October 2012
A fact sheet for people with mild haemophilia, with information about what you need to know about mild haemophilia, symptoms, treatment, when to seek help, what to tell other doctors and dentists, how to recognise serious bleeding, and tips for living well.
Download PDF/print version - 205KB

mild haemophilia fact sheet

Living with mild haemophilia: a guide - October 2011
A comprehensive guide to living with mild haemophilia, including diagnosis, genetic inheritance and planning a family, treatment and care, special issues for girls and women and information on living well.
Download full PDF/print version - 2.95MB

Mild haemophilia booklet

Download sections

Living with an inhibitor - 1999 - This booklet is under review
A valuable resource for those living with inhibitors, including a useful section on self-management.
Download PDF/print version - 5.61MB
Living with an inhibitor booklet
I've got an inhibitor - 1999
A colouring book for children with haemophilia and inhibitors, this resource aims to inform children of their condition and provides pain management techniques to manage it.
Download PDF/print version - 3.15MB
I've got an inhibitor colouring book
Preventing a joint bleed - a parent's guide to the prophylactic treatment of haemophilia - 2000
The history of prophylaxis, advantages, disadvantages, techniques, case studies.
Download PDF/print version - 1.99MB
Preventing a joint bleed booklet

Giving Tom His Prophylaxis - 2000
A practical and entertaining colouring and puzzle book dealing with prophylaxis, ideal for the younger child.
Download PDF/print version - 3.96MB

Giving tom his prophylaxis colouring book

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Last Updated: 29th Aug 13