Haemophilia Foundation Australia News 2007-07-27 16:Jul:th 2007-07-27 16:Jul:th http://www.haemophilia.org.au ncoco@haemophilia.org.au Copyright 2007 Haemophilia Foundation Australia Fri, 27 Jul 2007 16:16:05 +1000 Fri, 27 Jul 2007 16:16:05 +1000 http://www.haemophilia.org.au/news/id/49 HEMOPHILIA 2008
ISTANBUL, TURKEY
1-5 JUNE 2008

FUNDING AVAILABLE

Funding is available for haemophilia community volunteers and health professionals to attend Hemophilia 2008 in Istanbul, Turkey, 1-5 June 2008.

This is a great opportunity to attend the most important international haemophilia meeting. If you meet the following criteria and wish to consider making an application contact hfaust@haemophilia.org.au or telephone HFA on freecall 1800 807 173.

Funding is available for:
* one person who is a member of a Haemophilia Foundation and is affected by a bleeding disorder (the application must be endorsed by the applicant’s local Haemophilia Foundation).
* haemophilia nurse
* haemophilia social worker/counsellor
* haemophilia physiotherapist

Applications should be made on the relevant application form which can be downloaded below. Please note: There are 2 different types of application forms; Health Professionals & Community Representatives. Applcations must be received by 10 August 2007.

For more information on Hemophilia 2008, and to register online, visit www.hemophilia2008.org. Note that early bird registration closes 31 October 2007.
Wed, 25 Jul 2007 11:55:26 +1000 Wed, 25 Jul 2007 11:55:26 +1000 http://www.haemophilia.org.au/news/id/48 Join us and the world in celebrating Global Feast - click here for more information - Global Feast Mon, 28 May 2007 10:17:29 +1000 Mon, 28 May 2007 10:17:29 +1000 http://www.haemophilia.org.au/news/id/47 Over 200 runners and walkers turned out yesterday for the inaugural Red Run Classic. The event was the first of its kind for Haemophilia Foundation Australia and Haemophilia Foundation Queensland.

For full results click here - http://www.haemophilia.org.au/knowledge/cid/21/category/Events/parent/0/t/knowledge Tue, 20 Mar 2007 10:22:19 +1000 Tue, 20 Mar 2007 10:22:19 +1000 http://www.haemophilia.org.au/news/id/44 Every year, countries around the world join the World Federation of Hemophilia (WFH) in celebrating World Haemophilia Day on April 17. The common goal for this day is to increase awareness of haemophilia and reaffirm our commitment to improving care. The theme for 2007 is Improve Your Life!

This year’s theme builds on the WFH’s strategic vision of “Treatment for All.” This vision aspires towards proper diagnosis, management, and care by a multidisciplinary healthcare team for all those with inherited bleeding disorders around the world.

Improve Your Life! focuses on one of the key components of comprehensive care: physical therapy. Regular physical activity and exercise are important for building healthy bones and strengthening muscles, and can help prevent bleeds and joint damage. Physical therapists are important members of the multidisciplinary team needed to care for people with haemophilia and other inherited bleeding disorders.

This year’s focus on physical therapy will be especially meaningful in developing countries, where access to treatment products and care can be scarce. In developed countries with greater access to treatment, physical therapy remains an essential part of comprehensive medical care.

For more information and downloads visit WFH website - www.wfh.org Fri, 15 Dec 2006 15:50:25 +1000 Fri, 15 Dec 2006 15:50:25 +1000 http://www.haemophilia.org.au/news/id/41 The Report of the Plasma Fractionation Review was released on Friday 15 December 2006.

An electronic version of the report, can be downloaded below or visit
www.health.gov.au/plasmafractionationreview
Tue, 28 Nov 2006 09:47:46 +1000 Tue, 28 Nov 2006 09:47:46 +1000 http://www.haemophilia.org.au/news/id/40 1 December is recognised internationally as World AIDS Day. World AIDS Day is preceded by AIDS Awareness Week, beginning annually on 24 November. The aim of World AIDS Day and AIDS Awareness Week is to raise consciousness in the community about HIV/AIDS issues, including the need for support and understanding for people living with HIV/AIDS, and the need for the development of education and prevention initiatives.

The theme and sub-theme for the 2006 Australian World AIDS Day campaign is: ‘HIV/AIDS: Let’s talk about it: many faces, different stories’.

The intention of the 2006 Australian World AIDS Day campaign is to increase knowledge about the impact of HIV/AIDS on the Australian population. The key messages are intended to be inclusive of all Australians, not just those most at risk of HIV infection. The objective of this year’s theme and sub-theme is to provide people with an opportunity to talk about the ‘many faces’ and ‘different stories’ of HIV/AIDS, and promote understanding of HIV/AIDS as an issue that affects everyone in the community.

World AIDS Day website
http://www.worldaidsday.org.au Mon, 09 Oct 2006 15:41:07 +1000 Mon, 09 Oct 2006 15:41:07 +1000 http://www.haemophilia.org.au/news/id/39 Haemophilia Awareness Week was launched today by Haemophilia Foundation Australia Patron Sir Ninian Stephen in Melbourne. Sir Ninian said “Haemophilia Awareness Week provides an opportunity to review the successes and remind ourselves of the challenges.”

Neil Boal, spoke of the personal challenges of living with haemophilia and Dr Chris Barnes, Director, Henry Ekert Haemophilia Treatment Centre, Melbourne talked of some of the myths about haemophilia.

The launch was attended by people in the bleeding disorders community, health professionals, HFA supporters and our Corporate Partners and others. Tue, 12 Sep 2006 14:08:02 +1000 Tue, 12 Sep 2006 14:08:02 +1000 http://www.haemophilia.org.au/news/id/38 National Hepatitis C Awareness Week will be held October 1- 7, 2006.
The 2006 Awareness Week aims to promote general public awareness of hepatitis C, with a particular emphasis on effective self-management practices for people living with hepatitis, their friends and family, and those involved in their care.

For more information visit the website - http://www.hepcawareness.net.au

Media Releases can be downloaded below. Tue, 25 Jul 2006 17:23:56 +1000 Tue, 25 Jul 2006 17:23:56 +1000 http://www.haemophilia.org.au/news/id/36 The new National Blood Authority (NBA) contracts for the supply of recombinant and certain plasma-derived products took effect from 1 July 2006. These contracts provide products which are not produced in Australia, but are necessary for the treatment of people with haemophilia and other bleeding disorders.

For more information on the new government contracts for recombinant haemophilia products, download the attached document. Tue, 25 Jul 2006 16:31:13 +1000 Tue, 25 Jul 2006 16:31:13 +1000 http://www.haemophilia.org.au/news/id/35 YOUTH LEADERSHIP AND MENTORING PROGRAM
TRAINING WEEKEND
THURSDAY 12 to SUNDAY 15 OCTOBER 2006 LAUNCESTON TASMANIA

The HFA Youth Committee invites young people aged 14 and over with haemophilia, von Willebrand disorder or a related bleeding disorder and their siblings from all around Australia to join our youth training weekend.

To be held over a 3 day weekend the training will be great for people to meet and have fun as well as learn important things about bleeding disorders.

The weekend workshops will include:

* Leadership Training, and skills development for Public Speaking
* Information sessions on discrimination and insurance
* Workshops about health ~
**haemophilia, von Willebrand disorder, treatment and care, prophylaxis, maintaining healthy joints, complications such as hepatitis C, managing your own health, relationships, issues for siblings, womens? health matters, recreation, lifestyle, school, career and work

On the Sunday there will be fun and adventure activities such as horse riding and fly fishing. The training weekend will be held in at the Country Club Resort in Launceston.

For more information and bookings contact Natashia Coco at HFA on 1800 807 173 or email ncoco@haemophilia.org.au. Some state and territory foundations are offering funding to the training weekend. Contact your local foundations direct for more information.

Come and join other young people from around Australia for this every exciting weekend!