News

HIV Futures 6 Report now available

Wed, 10 Mar 2010 17:32:18 +1000

The report from the HIV Futures 6 Survey is now available for downloading at:
www.latrobe.edu.au/hiv-futures/

If you would like a print copy of the report, please contact:

HFA or your local Haemophilia Foundation
Your Haemophilia Social Worker/Counsellor
Phone HIV Futures on 1800 064 398
Or email hivfutures@latrobe.edu.au.

The HIV Futures 6 survey was completed by 1106 HIV positive Australians from all states and territories, including some people with bleeding disorders. It considered many aspects of people’s lives, including their health and treatments, services they used, their social world, home, work and financial situation.

HIV Futures is an ongoing research study into all aspects of living with HIV in Australia. Results are an important means of highlighting the current needs of people living with HIV around Australia. The study is conducted by the Australian Research Centre in Sex, Health and Society (ARCSHS) at La Trobe University, Melbourne.

Thanks to those who completed the survey and state/territory Haemophilia Foundations and Haemophilia Social Workers and Counsellors who supported the survey process.

World Congress abstracts deadline

Thu, 07 Jan 2010 12:14:29 +1000

Hemophilia 2010, the International Congress of the World Federation of Hemophilia, will be held in Buenos Aires, Argentina, from Saturday 10 July to Wednesday 14 July 2010.

The deadline for abstracts is 15 January 2010.
Registrations close on 14 May 2010.

The congress will bring together delegates from around the world to take part in a diverse and exciting program. Sessions cover medical, multidisciplinary and laboratory science issues, with topics of special interest for people with bleeding disorders, members of national haemophilia organisations and health professionals.

If you are interested in submitting an abstract, check the topics in the Medical and Multidisciplinary Program and consider what you may have to contribute.

For more information, visit the HFA World Congress page.

Haemophilia Foundation Research Fund

Thu, 10 Dec 2009 15:21:38 +1000

Grants are now available for medical, scientific or social research which will improve outcomes for people with haemophilia, von Willebrand disorder or related inherited bleeding disorders, and/or medically acquired blood borne viruses.

A total amount of $15,000 is available for one or more projects to be undertaken over the next year.

Application form and conditions of funding are available here - HFRF

Closing Date 31 March 2010

Damon Courtenay Memorial Endowment Fund

Thu, 10 Dec 2009 15:19:55 +1000

Damon Courtenay Memorial Endowment Fund are now open - for information and application forms click here DCMEF

Applications close: 30 April 2010

Vision and Leadership Awards

Thu, 10 Dec 2009 15:17:51 +1000

The Vision and Leadership Awards are now open - for information and application forms click here v&l

Applications close: 31 March 2010

World AIDS Day

Tue, 01 Dec 2009 00:00:00 +1000

Globally World AIDS Day is celebrated on Tuesday 1 December.

The theme for this year is: "Take action. No discrimination.". It focusses on the need to understand the needs of people with HIV and support them to live a life free of discrimination. This reflects the feedback from Australians affected by HIV, including some members of the bleeding disorders community, that in 2009 stigma and discrimination continue to be major issues that impact on their everyday lives.

World AIDS Day gives an opportunity to pause and acknowledge the people with bleeding disorders and their partners and families around the world who were affected by the HIV/AIDS epidemic in the mid-1980s when HIV was found in some blood clotting treatment products. In the early 1990s they also found their blood products had been affected by hepatitis C. Since then haemophilia treatment product safety has improved greatly and the risk of new infections from using human blood products is now thought to be extremely low. In 1985 HIV testing and inactivation was introduced for Australian blood products. Children and previously untreated adults with haemophilia have been treated since the mid 1990s in Australia with recombinant treatment products which are genetically engineered and contain little or no human material. In 2004 Australian governments agreed to fund sufficient supplies of these recombinant clotting factors for people with haemophilia of all ages.

Haemophilia Foundation Australia held a Remembrance Service during the 15th Australian and New Zealand Haemophilia Conference in October to remember those in the bleeding disorders community who have died.

Throughout the world many people wear the HIV/AIDS Red Ribbon on World AIDS Day to declare support for HIV positive people and those who are affected by HIV/AIDS. It is a symbol to the memory of those who have died and support for those who live with HIV. In 2009 our challenge is to put the symbol into action by finding ways we can strengthen our support to affected members and work towards a community free of discrimination.

For more information about World AIDS Day, go to www.worldaidsday.org.au, or contact your local HIV organisation or HFA.

National Raffle Winners

Fri, 30 Oct 2009 17:17:51 +1000

NATIONAL HAEMOPHILIA FOUNDATION RAFFLE

1st PRIZE ~ SONY DSCW 2900s Digital Camera RRP $529.00
Description: Digital Camera kindly donated by Midland Retravision
Winner: Ticket No 1504 – Ms Jenny Barnard WA

2nd PRIZE ~ Overnight Accommodation at Travelodge RRP $250.00
Overnight accommodation for two people in a Travelodge Hotel of choice (Sydney, Melbourne, Perth, Brisbane, Darwin, Rockhampton and Newcastle) valued at $250. Accommodation package kindly donated
by Travelodge Hotels
Winner: Ticket No 2048 – Lani Manganaro WA

3rd PRIZE ~ i-Pod Shuffle RRP $62.00 & iSUBSCRIBE! voucher RRP $50
Mini i-Pod Shuffle 1GB and iSUBSCRIBE! voucher redeemable online. Voucher kindly donated by iSUBSCRIBE!
Winner: Ticket No 0252 – J Furmedge VIC

4th PRIZE ~ Natio Pamper Hamper RRP $100
Natural Australian skincare for men and women kindly donated by Natio
Winner: Ticket No 0479 – A Naglewicz WA

Drawn Friday 30 October 2009

HFA Media Release 081009

Sun, 11 Oct 2009 10:37:16 +1000

Advance Your Passion Awards

Mon, 31 Aug 2009 00:00:00 +1000

Baxter Healthcare has established Advance Your Passion Awards for young people with a bleeding disorder who are between 14 and 21 years of age to advance their lives in areas that they are passionate about.

Applications close on Friday 18 September 2009.

If you are interested in finding out more, go to the Baxter Healthcare Advance Your Passion web site - http://www.advanceyourpassion.com

Youth Conference Funding Available

Mon, 06 Jul 2009 15:38:53 +1000

Haemophilia Foundation Australia is offering funding to youth from around Australia to attend the Brisbane Conference. Full funding for 11 youth (registration, airfare and accommodation) and a further 7 for part funding only for conference registration, is available. Youth must be aged over 15 years and priority will be given to young people who have not previously attended a conference.

For further information and an application form click here - Youth-Whats On