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June 2024 Newsletter

Read the latest newsletter for HFA....

Men’s Health Week 2024

International Men’s Health Week runs each year in the middle of June. It is an important opportunity to highlight the...
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HFA Gene Therapy Snapshot Survey

HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy...

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Personal stories
Paul

Paul talks about his career

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his...
Jenny - acquired haemophilia

Acquired haemophilia – Jenny’s story

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully...
Claire speaking at the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

Hopes for the Future

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia,...
Girl playing in garden. Image by Emma Bauso for Pexels.

Growing up with Glanzmann thrombasthenia 

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your...

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