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No 206 June 2019

In this issue

  • National Haemophilia Journal

Bleeding Disorders Awareness Week 2019

  • 12 June 2019

Challenging the status quo Bleeding Disorders Awareness Week is an opportunity for individuals and families as well as Haemophilia Foundations…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 12 June 2019

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia OUR FINANCIAL RESOURCES AND FUNDRAISING When anyone asks us about how…

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  • National Haemophilia Journal

Red Classic 2019

  • 12 June 2019

The Red Classic was a fun and free event hosted in Sydney on Sunday 7 April 2019 – it was…

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  • National Haemophilia Journal

2019 Conference

  • 12 June 2019

The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly, Sydney, 10-12…

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  • National Haemophilia Journal

Putting VWD on the map

  • Suzanne O'Callaghan -
  • 12 June 2019

The WFH VWD Global Group meeting 2019 Photo: WFH SUZANNE O'CALLAGHAN Suzanne O'Callaghan is Policy Research and Education Manager, Haemophilia…

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  • National Haemophilia Journal

PROBE for real-world evidence

  • 12 June 2019

The real-world PROBE study is now available! WHY IS THE PROBE STUDY IMPORTANT? What is the impact of haemophilia and…

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  • National Haemophilia Journal

World Haemophilia Day

  • 12 June 2019

Thank you to all who supported World Haemophilia Day! Every year on 17 April World Haemophilia Day is recognised worldwide…

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  • National Haemophilia Journal

Exploring pain

  • Kathryn Body -
  • 12 June 2019

KATHRYN BODY Kathryn Body is the Haemophilia and Bleeding Disorders Counsellor, Haemophilia Foundation ACT Managing chronic pain is complex and…

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  • National Haemophilia Journal

Joint surgery

  • Abi Polus -
  • 12 June 2019

This article was originally published in The Missing Factor, December 2018, newsletter of Haemophilia Foundation Victoria (www.hfv.org.au), and is adapted with…

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  • National Haemophilia Journal

Future proofing

  • Preetha Jayaram -
  • 12 June 2019

An important aspect of the health and wellbeing of bleeding disorders community members?  PREETHA JAYARAM Preetha Jayaram is the Haemophilia…

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  • National Haemophilia Journal

What do we know about carriers?

  • Joanna McCosker -
  • 12 June 2019

JOANNA MCCOSKER Joanna McCosker is the Nurse Practitioner at the Queensland Haemophilia Centre, Queensland Children’s Hospital, Brisbane In haemophilia care…

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  • National Haemophilia Journal

Haemophilia school resources

  • Amy Finlayson -
  • 12 June 2019

AMY FINLAYSON Amy Finlayson is the Haemophilia Clinical Nurse at the Queensland Children’s Hospital, Brisbane Haemophilia, unlike other well-known conditions…

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  • National Haemophilia Journal

Youth News – Rock climbing challenge

  • 12 June 2019

Andrew climbing at Wye Creek in New Zealand Photo: Andrew and Scott Godwin Australian brothers Andrew, 30 and Scott, 37,…

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  • National Haemophilia Journal

South Australia update

  • 12 June 2019

Thank you to Christine for arranging a great get-together for South Australians affected by bleeding disorders in the gardens at…

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  • National Haemophilia Journal

Calendar

  • 12 June 2019

19th Australian Conference on haemophilia & rare bleeding disorders Novotel Manly, Sydney 10-12 October 2019   Bleeding Disorders Awareness Week 13-19…

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