What to expect

What can I expect?

little cousins with haemophilia
Every child will have their own individual experience with haemophilia. 
  • Babies usually have very few problems, with the exception of babies who require a medical procedure or have surgery such as circumcision. As your child becomes mobile, there may be more bruises and bleeds. 
  • Your child will be able to do most things that other children their age can do. 
  • Your child will be able to be cared for by babysitters, attend child care, preschool and participate in the normal school environment. You will just need to make sure that whoever is in charge knows about your child’s haemophilia and what to do in an emergency.
  • Your child can travel. 
  • Bleeds need to be treated promptly. 
  • The frequency of treatment with factor (factor replacement therapy) depends on the severity of your child’s haemophilia, their tendency to bleed and the type of factor replacement therapy. 
  • Treatment is initially given in hospital. If your child requires regular treatment (prophylaxis) and you are comfortable to do so, you can learn to provide treatment at home.
If you have questions at any time, don’t hesitate to contact the team at your HTC. They are happy to help you.  

Date last reviewed: October 2017
Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information.
This information may be printed or photocopied for educational purposes.