The importance of our camps for children and families cannot be underestimated. At these camps, children connect with others going through the same challenges and form life-long friendships with others who understand what it’s like to live with an incurable chronic condition. Check out this great video showing you just how powerful the weekend can be!
Growing up with Glanzmann thrombasthenia
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.