Have Your Say

Have your say

Community consultation is an important part of the MyABDR project.

This will help to tailor the MyABDR app and web site so that they will work well for the people who will be using them.

It also helps us to understand the questions and concerns in the community so that we can address them.

Questions or comments?

Use the MyABDR feedback Form to send us your questions or comments about MyABDR.

National focus group for testing

Prototypes for the MyABDR app and web site will be developed from August 2013 and tested between October 2013 and February 2014.

A group of people who home treat have joined a national focus group to test the MyABDR app and web site prototypes while they are in development.

Most people in the focus group will test the prototypes on their mobile devices and computers at home. This will take place between 21 December 2013 and 12 January 2014.

Some have also joined small group face-to-face workshops with the MyABDR project team to do intensive testing and feedback.

If you are in Australia and treat at home for a bleeding disorder and are interested in participating in the national home testing focus group, contact Suzanne O'Callaghan at HFA – socallaghan@haemophilia.org.au or phone 1800 807 173.

Community survey

During July and August 2013 the MyABDR Project Team conducted an online community survey about how people currently – and would like to - record their home therapy, their mobile devices and home computers, and other questions about functionality.

The community survey was promoted widely and more than 80 people from around Australia responded. This has provided the development team with some very valuable information about what would be important about the MyABDR app and web site for community members:

  • “Ease of use and having accurate information available to my doctors and other trained staff”
  • “Security/confidentiality/software stability and consistency”
  • “I think a phone app would be brilliant, easy to access as always have phone on me. And also easy to pull up info on phone.”
  • “Make sure there is enough space to record any extra information or comments.”

Our thanks to those who participated in the survey for their thoughtful and informative answers.


Date last reviewed: 4th December 2013