What tips do others have?

  • Stay in regular contact with your local Haemophilia Treatment Centre (HTC) team and make sure you keep up with anything new. The HTC is there to help and can give you advice or talk over any problems or concerns
  • Keep in touch with your Haemophilia Foundation for updates on new information and enjoy a chat with other women who know what it’s like.
  • Let your dentist or your doctor know you have a bleeding disorder and advise your HTC team in advance of planned medical or dental procedures, no matter how minor, so that any procedures such as surgery, biopsies, childbirth, gynaecological or dental procedures that may result in bleeds can be managed in liaison with your HTC team
  • Consult with your haematologist before taking medicines containing aspirin, non-steroidal anti-inflammatory drugs, and other blood thinners or supplements, herbal or homeopathic medicines that affect platelet function or clotting. This includes fish oil capsules with omega-3 fatty acids, and herbal treatment doses of ginkgo biloba, ginger, ginseng and chondroitin
  • Ask your HTC for an ABDR patient card with your diagnosis, recommended treatment and who to contact in an emergency. Keep it on hand and show it to your other doctors or dentist and ask them to liaise with the HTC team.

Date last reviewed: September 2020