2007 Conference

2007 Canberra Conference

The 14th Australian and New Zealand Haemophilia Conference was held at Hyatt Canberra from Thursday 4 October – Sunday 7 October 2007.

Abstract Book

Abstract handbook

Friday 5 October
 

Plenary 1

Key issues in haemophilia 1

"Ethnomics", identity and agency in haemophilia care - A/Prof Ian Kerridge - [PDF, 146KB]
Assessing outcome of haemophilia treatment - the role of Health-Related Quality of Life (HRQoL) - Dr Kathelijn Fischer - [PDF, 819KB]

Concurrent 1 - AM (1100-1230)

Inhibitor risk profiling – the care and management of inhibitors

Living with an inhibitor - a personal reflection - Michael Prendergast - [PDF,43KB]
Predicting inhibitors - Dr Jamie Price - [PDF, 31KB]Role of plasma products in the treatment of haemophilia today - Dr Scott Dunkley - [PDF, 497KB]
Treatment of patients with inhibitors and immune tolerance - Dr Chris Barnes - [PDF, 204KB]

Concurrent 2 - AM (1100-1230)

Helping families to manage bleeding disorders better

Understanding pain and needle phobia - comfort and coping strategies - Dr Angela Mackenzie - [PDF, 219KB]
Impact of bleeding disorders on the family - tools for advocating for your child and family - Colleen McKay - [PDF, 298KB]
Parents & health professionals in partnership - improving services in Haematology/Oncology unit at the Women's & Children's Hospital - Anne Jackson & Sharyn Wishart - [PDF, 550KB]

Concurrent 3 - AM (1100-1230)

Hepatitis C treatment and care

Hepatitis C treatment and care: relevance to haemophilia - Prof Geoffrey Farrell - [PDF, 424KB]
Making decisions about hepatitis C treatment: what men are thinking - Dr Stephen McNally - [PDF, 205KB] 

Concurrent 1 - PM (1330-1500)

Understanding von Willebrand Disorder

Some practical aspects of laboratory testing for von Willebrand Disorder - Geoff Kershaw - [PDF, 436KB]
Demystifying the classification of von Willebrand Disorder and lessons from the Australian clinical trials – A/Prof Ross Baker - [PDF, 1014KB]
1 + 1 = 3 - A family experience of von Willebrand Disorder - Lorraine Bishop

Concurrent 2 - PM (1330-1500)

Youth Matters

Building relationships – effective communication and telling partners about bleeding disorders/blood borne viruses - Dr Sarah Martin - [PDF, 483KB]
Better health and fitness: laying the foundation for positive and independent management of haemophilia - Brendan Egan & Janine Furmedge - [PDF, 1.5MB]
Making the move: There is planning and there is what actually happens! - Leonie Mudge - [PDF, 347KB]

Concurrent 3 - PM (1330-1500)

Fitness in children

Fitness and physical activity in children with haemophilia - Dr Carolyn Broderick - [PDF,548KB]
Strategies to promote healthy participation – overcoming the barriers - Wendy Poulsen and Salena Griffin - [PDF, 1.6MB]

Saturday 6 October

Plenary 3

Key issues in haemophilia 2

Pre-implantation genetic diagnosis and assisted reproductive technology in haemophilia - Dr Penelope Foster - [PDF, 577KB]
Individualisation of prophylaxis in severe haemophilia: starting, dosing, tapering/stopping - Dr Kathelijn Fischer - [PDF, 376KB]

Concurrent 1 - AM (1100-1230)

Complications of ageing

Vascular disease in haemophilia - A/Prof Alison Street - [PDF, 414KB]
Chronic haemophilic arthropathy - Prof John York - [PDF, 901KB]
Falls and balance – from research to practice - Prof Keith Hill & Marcia Fearn - [PDF, 1.1MB]

Concurrent 2 - AM (1100-1230)

Impact of Hepatitis C

Hepatitis C and young people - Vicki Jermyn - [PDF, 443KB]
Hepatitis C related stigma and discrimination - origins, impacts and responses - Helen Tyrrell - [PDF, 95KB]
Experiences of the bleeding disorders community – HFA hepatitis C needs assessment - Suzanne O’Callaghan - [PDF, 53KB] 

Concurrent 3 - AM (1100-1230)

Women's Wisdom

Mothers, partners, carers, people with bleeding disorders and carriers of the haemophilia gene - Belinda Burnett - [PDF, 320KB]
Genetic aspects of haemophilia - Dr Susan Russell (presented for Dr David Mowat) - [PDF, 490KB]
Management of delivery in carriers & Management of the newborn - Dr Susan Russell - [PDF, 203KB]
Menorrhagia: best Care and practice - Dr Julia Phillips - [PDF, 459KB]

Concurrent 1 - PM (1330-1500)

Scientific and Psychosocial snapshots – new initiatives and progress

The measurement of physical activity in boys with severe haemophilia - Brendan Egan - [PDF, 91KB]
Workshop for young women and bleeding disorders - Colleen McKay - [PDF, 355KB]
Attitudes towards and beliefs about genetic testing in the haemophilia community - Dilinie Herbert - [PDF, 78KB]
A retrospective study of the utility of the 1-deamino-8-D-arginine vasopressin (DDAVP) trial in the management of patients with von Willebrand disorder - Dr Jake Shortt - [PDF, 353KB]
Blood, toil and tears: clinical and psychosocial outcomes over 25 years in patients with haemophilia infected with HIV & The safety and efficacy of enfuvirtide therapy for HIV infection in patients with haemophilia - Dr Mark Polizzotto - [PDF, 859KB]

Concurrent 2 - PM (1330-1500)

Men's Health - it's bloke's business

Managing arthritis - Helen Cody - [PDF, 383KB]
Dealing with Depression - Dr Paul Denborough - [PDF, 153KB]

Concurrent 3 - PM (1330-1500)

Planning and managing best practice care and treatment

Using data for better clinical outcomes - A/Prof Ross Baker - [PDF, 85KB]
The NBA four years on - focus on patient needs, achievements and future opportunities - Dr Alison Turner - [PDF, 4.6MB]
Blood products for the treatment of haemophilia: priorities for government - Roderick Saunders - [PDF, 31KB]
Safety of haemophilia products - keeping ahead through regulation - Prof Albert Farrugia - [PDF, 298KB]