Program

The conference program ran over two days, Friday 8 October to Saturday 9 October, with a combination of keynote and concurrent sessions. These sessions are now available on-demand for those who have registered.

Read the Abstracts Booklet

Accessing the conference presentations on-demand
  • If you have already registered for the conference, log in using your conference username and password, then visit Program on Demand to find and watch the sessions.
  • If you haven't registered, you can still register online here.
Conference presentations will be available on-demand until April 2022.
 
  FRIDAY 8 OCTOBER 2021

0855

Official Conference Welcome & Acknowledgement of Country

Gavin Finkelstein, President HFA and Dr Ritam Prasad, Conference Co-chair 

0900-1015

Plenary 1 – The changing world of bleeding disorders 

Chair: Dr Ritam Prasad  

Short Personal Stories

Overview of the Australian experience - spectrum of changes in bleeding disorders over the years
~ Prof Huyen Tran, Director, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne, VIC

Are we there yet? The innovative future of bleeding disorders treatment
~ Dr David Lillicrap, Professor, Department of Pathology and Molecular Medicine at Queen’s University, Kingston, Canada

An overview of the impact of advances in treatment on quality of life and independence and on clinical practice.
~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney NSW

Q&A

1015-1045

MORNING TEA

1045-1215

Concurrent 1 - Managing bleeds under current new treatments 

Chair: Jane Portnoy 

The impact of new haemophilia treatments on people with haemophilia, parents and health professionals
~ Jane Portnoy, Social Worker, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne,
VIC

Patient experiences ~ Lenny, Leah, Bruce

Understanding bleeds under new treatments
~ Dr Julie Curtin, Senior Staff Specialist & Head of Haematology/Blood Bank at The
Children’s Hospital at Westmead, Sydney NSW

Physiotherapist ~ Alison Morris
Senior Musculoskeletal Physiotherapist, Perth Children’s Hospital, WA
Nurses ~ Joanna McCosker
Haemophilia Nurse Practitioner, Queensland Children’s Hospital, QLD
And Beryl Zeissink
Clinical Nurse Consultant, Haemophilia Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital, QLD

Concurrent 2 – Von Willebrand disease

Chair: Susie Couper 

VWD personal experience
~ Perry

VWD genetics, diagnosis and classification
~ Dr Simon McRae, Clinical and laboratory Consultant Haematologist, Launceston General Hospital, TAS

VWD personal experience
~ Simoni

VWD treatment and future directions
~ Dr Nathan Connell, Associate physician, Hematology Division Brigham and Women’s Hospital, Assistant Professor of Medicine at Harvard Medical School, and Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital

 

1215-1325

LUNCH

1325-1455

Concurrent 3 – Sex, sexuality and intimacy

Chair: Scott Russell  

Awkward conversations – Talking about sex and intimacy
~ Simone Sheridan, Sexual Health Nurse Consultant – Austin Health

WFH video – ASK ME ANYTHING – Can sex cause a bleed?

Q&A with panel of experts:
Haematologist ~ A/Prof Chris Barnes
Director of the Henry Ekert Haemophilia Treatment Centre at the Royal Children’s
Hospital, Parkville, VIC
Sexual health nurse consultant with disability expertise ~ Simone Sheridan
Austin Health
Social worker ~ Alex Coombs
Social Worker, Ronald Sawers Haemophilia Centre, The Alfred, Melbourne, VIC
Physiotherapist ~ Scott Russell
Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD
Haemophilia nurse ~ Penny McCarthy
Haemophilia Nurse Consultant, Ronald Sawers Haemophilia Centre, The Alfred

Concurrent 4 - Women and girls 

Chair: Sharron Inglis 

Introduction and personal story
~ Sharron Inglis

Understanding, recording and reporting bleeding symptoms in girls and women
~ Joanna McCosker
Haemophilia Nurse Practitioner, Queensland Children’s Hospital, Brisbane QLD
~ Jaime Chase
Haematology Clinical Nurse Specialist, John Hunter Children’s Hospital
 

New clinical approaches in managing women and girls with bleeding disorders across the lifespan
~ Dr Mandy Davis, Clinical Haematology, Laboratory Haematology, The Alfred, Melbourne VIC

Gynaecological issues for women and girls with bleeding disorders
~ Dr Angela Dunford, Obstetrican Gyanecologist, John Hunter and John Hunter Children’s Hospitals Newcastle, NSW

Sport and exercise for girls and women
~ Hayley Coulson, Physiotherapist Queensland Children’s Hospital, Brisbane, QLD

1455-1535

AFTERNOON TEA

1535-1700

Plenary 2 – Dealing with change

Chair: Sharon Caris 

Dr Charlotte Keating is a psychologist, with a PhD in neuroscience, specialising in adolescents and executives. She is a passionate advocate for mental health, particularly for young people. Charlotte is a Member of the Australian Psychological Society and an Associate Member of the College of Clinical Psychologists.

*This session will only be available live, not on-demand*

1800-1830

Remembrance Service
A time for everyone to come together, reflect and remember family and friends in our community.

1900 - 2000

Battle of the Trivia
Friday night social activity

 

  SATURDAY 9 OCTOBER 2021

0900-1015

Plenary 3 - Pain 

Chair: Dr Liane Khoo 

What’s new in pain?   Is it different now with new treatments?
~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital,
Sydney, NSW

Pain in haemophilia
~ Mr Paul McLaughlin, Clinical Specialist Physiotherapist in Haemophilia, Katharine Dormandy Haemophilia Centre at Royal Free Hospital in London, United Kingdom

A body and mind approach for pain management in people with bleeding disorders   
~ A/Prof Carolyn Arnold, Head of Pain Management. Alfred Health Melbourne, VIC

Patient personal perspective on chronic pain
Jane Portnoy interviewing Dylan

Osteoarthritis, exercise and pain: the GLA:D® program.
~ Dr Christian Barton, Associate Professor Physiotherapy Physiotherapy, La Trobe Melbourne

Panel Q&A

1015-1045

MORNING TEA

 1045-1215

Concurrent 5 - Making the most of your health virtually 

Chair: Suzanne O'Callaghan 

Embracing health care futures: Global trends in consumer health care innovation and where they’re taking us
~ Dr Zaana Howard, Customer Experience and Design Leader + Transformational Coach

Future digital healthcare environment in Australia
~ Bettina McMahon, Chief Executive Officer, Healthdirect Australia

New experiences with diagnostics and programs in bleeding disorders – Australian case studies:
Telehealth and physiotherapy ~ Scott Russell, Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD
Telehealth and infusion training ~ Erin Krake, Nurse, Henry Ekert Haemophilia Treatment Centre, Royal Children’s Hospital, Parkville VIC

Panel discussion and Q&A
Nurses & data manager – Janine Furmedge, Julia Ekert, Erin Krake
Physiotherapist ~ Helen Dixon
Social worker ~ Sharon Danilovic
Patient ~ Neil

Concurrent 6 – Getting stronger safely 

Chair: Abi Polus 

Research into exercise for boys with haemophilia (DOLPHIN-II Trial)
~ Dr David Stephensen, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia
Centre at the Royal London Hospital, United Kingdom

Less is more - getting the most out of limited time in the gym
~ Dr Mervyn Travers, Senior Research Scholar, School of Physiotherapy, The University of Notre Dame
Australia, Perth, WA.

Panel Q&A
~ Merv Travers, Abi Polus and Tim

1215-1325

LUNCH

1325-1455

Concurrent 7 - Youth – challenges, taboos and myths 

Chair: Robyn Shoemark 

Growing up
~ Dale’s story

Mother and Son journey through teenage years
~ Heidi & Sam

Resilience
How to deal with cyber bullying and communication
Looking after your mental health
~ Monique Craft

Panel Q&A

Concurrent 8 - Getting older 

Chair: Jenny Lees 

Personal story
~ Zev

Clinical issues with ageing
~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, United Kingdom

Getting Older report – results and implementation
~ Suzanne O'Callaghan, Policy Research and Education Manager at Haemophilia Foundation Australia, East
Malvern VIC
 

Panel Discussion: What are the issues and challenges ahead?
Facilitator ~ Suzanne O'Callaghan
Nurse ~ Stephen Matthews
Physiotherapist ~ Frankie Mullen
Psychosocial worker ~ Kathryn Body

1455-1535

AFTERNOON TEA

1535-1700

Plenary 4 – Where to from here? 

Chair: Dr Ritam Prasad 

Haemophilia care in 2030 ~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, United Kingdom

Where to from here? ~ Dr David Stephenson, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia
Centre at the Royal London Hospital, United Kingdom

My vision for treatment and care into the future:
Young man with severe haemophilia ~ Alan
Parent of children with haemophilia ~ Claude
Woman with VWD ~ Shauna

Bleeding disorders treatment and care into the future ~ Dr Ritam Prasad, Director, Haemophilia Treatment Centre Newcastle NSW

Where to from here? Achieving the vision ~ Sharon Caris, Executive Director, Haemophilia Foundation Australia, East Malvern VIC

Panel discussion/Q&A

Wrap up and thank you!


Date last reviewed: 21 October 2021