Program

The conference program ran over two days, Friday 8 October to Saturday 9 October, with a combination of keynote and concurrent sessions. To view on demand click here

Read the Abstracts Booklet

	FRIDAY 8 OCTOBER 2021
0855	Official Conference Welcome & Acknowledgement of Country Gavin Finkelstein, President HFA and Dr Ritam Prasad, Conference Co-chair
0900-1015	Plenary 1 – The changing world of bleeding disorders Chair: Dr Ritam Prasad Short Personal Stories Overview of the Australian experience - spectrum of changes in bleeding disorders over the years ~ Prof Huyen Tran, Director, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne, VIC Are we there yet? The innovative future of bleeding disorders treatment ~ Dr David Lillicrap, Professor, Department of Pathology and Molecular Medicine at Queen’s University, Kingston, Canada An overview of the impact of advances in treatment on quality of life and independence and on clinical practice. ~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney NSW Q&A
1015-1045	MORNING TEA
1045-1215	Concurrent 1 - Managing bleeds under current new treatments Chair: Jane Portnoy The impact of new haemophilia treatments on people with haemophilia, parents and health professionals ~ Jane Portnoy, Social Worker, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne, VIC Patient experiences ~ Lenny, Leah, Bruce Understanding bleeds under new treatments ~ Dr Julie Curtin, Senior Staff Specialist & Head of Haematology/Blood Bank at The Children’s Hospital at Westmead, Sydney NSW Physiotherapist ~ Alison Morris Senior Musculoskeletal Physiotherapist, Perth Children’s Hospital, WA Nurses ~ Joanna McCosker Haemophilia Nurse Practitioner, Queensland Children’s Hospital, QLD And Beryl Zeissink Clinical Nurse Consultant, Haemophilia Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital, QLD	Concurrent 2 – Von Willebrand disease Chair: Susie Couper VWD personal experience ~ Perry VWD genetics, diagnosis and classification ~ Dr Simon McRae, Clinical and laboratory Consultant Haematologist, Launceston General Hospital, TAS VWD personal experience ~ Simoni VWD treatment and future directions ~ Dr Nathan Connell, Associate physician, Hematology Division Brigham and Women’s Hospital, Assistant Professor of Medicine at Harvard Medical School, and Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital
1215-1325	LUNCH
1325-1455	Concurrent 3 – Sex, sexuality and intimacy Chair: Scott Russell Awkward conversations – Talking about sex and intimacy ~ Simone Sheridan, Sexual Health Nurse Consultant – Austin Health WFH video – ASK ME ANYTHING – Can sex cause a bleed? Q&A with panel of experts: Haematologist ~ A/Prof Chris Barnes Director of the Henry Ekert Haemophilia Treatment Centre at the Royal Children’s Hospital, Parkville, VIC Sexual health nurse consultant with disability expertise ~ Simone Sheridan Austin Health Social worker ~ Alex Coombs Social Worker, Ronald Sawers Haemophilia Centre, The Alfred, Melbourne, VIC Physiotherapist ~ Scott Russell Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD Haemophilia nurse ~ Penny McCarthy Haemophilia Nurse Consultant, Ronald Sawers Haemophilia Centre, The Alfred	Concurrent 4 - Women and girls Chair: Sharron Inglis Introduction and personal story ~ Sharron Inglis Understanding, recording and reporting bleeding symptoms in girls and women ~ Joanna McCosker Haemophilia Nurse Practitioner, Queensland Children’s Hospital, Brisbane QLD ~ Jaime Chase Haematology Clinical Nurse Specialist, John Hunter Children’s Hospital New clinical approaches in managing women and girls with bleeding disorders across the lifespan ~ Dr Mandy Davis, Clinical Haematology, Laboratory Haematology, The Alfred, Melbourne VIC Gynaecological issues for women and girls with bleeding disorders ~ Dr Angela Dunford, Obstetrican Gyanecologist, John Hunter and John Hunter Children’s Hospitals Newcastle, NSW Sport and exercise for girls and women ~ Hayley Coulson, Physiotherapist Queensland Children’s Hospital, Brisbane, QLD
1455-1535	AFTERNOON TEA
1535-1700	Plenary 2 – Dealing with change Chair: Sharon Caris Dr Charlotte Keating is a psychologist, with a PhD in neuroscience, specialising in adolescents and executives. She is a passionate advocate for mental health, particularly for young people. Charlotte is a Member of the Australian Psychological Society and an Associate Member of the College of Clinical Psychologists. This session will only be available live, not on-demand
1800-1830	Remembrance Service A time for everyone to come together, reflect and remember family and friends in our community.
1900 - 2000	Battle of the Trivia Friday night social activity

	SATURDAY 9 OCTOBER 2021
0900-1015	Plenary 3 - Pain Chair: Dr Liane Khoo What’s new in pain? Is it different now with new treatments? ~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney, NSW Pain in haemophilia ~ Mr Paul McLaughlin, Clinical Specialist Physiotherapist in Haemophilia, Katharine Dormandy Haemophilia Centre at Royal Free Hospital in London, United Kingdom A body and mind approach for pain management in people with bleeding disorders ~ A/Prof Carolyn Arnold, Head of Pain Management. Alfred Health Melbourne, VIC Patient personal perspective on chronic pain Jane Portnoy interviewing Dylan Osteoarthritis, exercise and pain: the GLA:D® program. ~ Dr Christian Barton, Associate Professor Physiotherapy Physiotherapy, La Trobe Melbourne Panel Q&A
1015-1045	MORNING TEA
1045-1215	Concurrent 5 - Making the most of your health virtually Chair: Suzanne O'Callaghan Embracing health care futures: Global trends in consumer health care innovation and where they’re taking us ~ Dr Zaana Howard, Customer Experience and Design Leader + Transformational Coach Future digital healthcare environment in Australia ~ Bettina McMahon, Chief Executive Officer, Healthdirect Australia New experiences with diagnostics and programs in bleeding disorders – Australian case studies: Telehealth and physiotherapy ~ Scott Russell, Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD Telehealth and infusion training ~ Erin Krake, Nurse, Henry Ekert Haemophilia Treatment Centre, Royal Children’s Hospital, Parkville VIC Panel discussion and Q&A Nurses & data manager – Janine Furmedge, Julia Ekert, Erin Krake Physiotherapist ~ Helen Dixon Social worker ~ Sharon Danilovic Patient ~ Neil	Concurrent 6 – Getting stronger safely Chair: Abi Polus Research into exercise for boys with haemophilia (DOLPHIN-II Trial) ~ Dr David Stephensen, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia Centre at the Royal London Hospital, United Kingdom Less is more - getting the most out of limited time in the gym ~ Dr Mervyn Travers, Senior Research Scholar, School of Physiotherapy, The University of Notre Dame Australia, Perth, WA. Panel Q&A ~ Merv Travers, Abi Polus and Tim
1215-1325	LUNCH
1325-1455	Concurrent 7 - Youth – challenges, taboos and myths Chair: Robyn Shoemark Growing up ~ Dale’s story Mother and Son journey through teenage years ~ Heidi & Sam Resilience How to deal with cyber bullying and communication Looking after your mental health ~ Monique Craft Panel Q&A	Concurrent 8 - Getting older Chair: Jenny Lees Personal story ~ Zev Clinical issues with ageing ~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, United Kingdom Getting Older report – results and implementation ~ Suzanne O'Callaghan, Policy Research and Education Manager at Haemophilia Foundation Australia, East Malvern VIC Panel Discussion: What are the issues and challenges ahead? Facilitator ~ Suzanne O'Callaghan Nurse ~ Stephen Matthews Physiotherapist ~ Frankie Mullen Psychosocial worker ~ Kathryn Body
1455-1535	AFTERNOON TEA
1535-1700	Plenary 4 – Where to from here? Chair: Dr Ritam Prasad Haemophilia care in 2030 ~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, United Kingdom Where to from here? ~ Dr David Stephenson, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia Centre at the Royal London Hospital, United Kingdom My vision for treatment and care into the future: Young man with severe haemophilia ~ Alan Parent of children with haemophilia ~ Claude Woman with VWD ~ Shauna Bleeding disorders treatment and care into the future ~ Dr Ritam Prasad, Director, Haemophilia Treatment Centre Newcastle NSW Where to from here? Achieving the vision ~ Sharon Caris, Executive Director, Haemophilia Foundation Australia, East Malvern VIC Panel discussion/Q&A Wrap up and thank you!

Date last reviewed: 2 June 2022