0900-1015
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Plenary 1 – The changing world of bleeding disorders
Chair: Dr Ritam Prasad
Short Personal Stories
Overview of the Australian experience - spectrum of changes in bleeding disorders over the years
~ Prof Huyen Tran, Director, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne, VIC
Are we there yet? The innovative future of bleeding disorders treatment
~ Dr David Lillicrap, Professor, Department of Pathology and Molecular Medicine at Queen’s University, Kingston, Canada
An overview of the impact of advances in treatment on quality of life and independence and on clinical practice.
~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney NSW
Q&A
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1045-1215
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Concurrent 1 - Managing bleeds under current new treatments
Chair: Jane Portnoy
The impact of new haemophilia treatments on people with haemophilia, parents and health professionals
~ Jane Portnoy, Social Worker, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne,
VIC
Patient experiences ~ Lenny, Leah, Bruce
Understanding bleeds under new treatments
~ Dr Julie Curtin, Senior Staff Specialist & Head of Haematology/Blood Bank at The
Children’s Hospital at Westmead, Sydney NSW
Physiotherapist ~ Alison Morris
Senior Musculoskeletal Physiotherapist, Perth Children’s Hospital, WA
Nurses ~ Joanna McCosker
Haemophilia Nurse Practitioner, Queensland Children’s Hospital, QLD
And Beryl Zeissink
Clinical Nurse Consultant, Haemophilia Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital, QLD
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Concurrent 2 – Von Willebrand disease
Chair: Susie Couper
VWD personal experience
~ Perry
VWD genetics, diagnosis and classification
~ Dr Simon McRae, Clinical and laboratory Consultant Haematologist, Launceston General Hospital, TAS
VWD personal experience
~ Simoni
VWD treatment and future directions
~ Dr Nathan Connell, Associate physician, Hematology Division Brigham and Women’s Hospital, Assistant Professor of Medicine at Harvard Medical School, and Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital
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1325-1455
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Concurrent 3 – Sex, sexuality and intimacy
Chair: Scott Russell
Awkward conversations – Talking about sex and intimacy
~ Simone Sheridan, Sexual Health Nurse Consultant – Austin Health
WFH video – ASK ME ANYTHING – Can sex cause a bleed?
Q&A with panel of experts:
Haematologist ~ A/Prof Chris Barnes
Director of the Henry Ekert Haemophilia Treatment Centre at the Royal Children’s
Hospital, Parkville, VIC
Sexual health nurse consultant with disability expertise ~ Simone Sheridan
Austin Health
Social worker ~ Alex Coombs
Social Worker, Ronald Sawers Haemophilia Centre, The Alfred, Melbourne, VIC
Physiotherapist ~ Scott Russell
Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD
Haemophilia nurse ~ Penny McCarthy
Haemophilia Nurse Consultant, Ronald Sawers Haemophilia Centre, The Alfred
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Concurrent 4 - Women and girls
Chair: Sharron Inglis
Introduction and personal story
~ Sharron Inglis
Understanding, recording and reporting bleeding symptoms in girls and women
~ Joanna McCosker
Haemophilia Nurse Practitioner, Queensland Children’s Hospital, Brisbane QLD
~ Jaime Chase
Haematology Clinical Nurse Specialist, John Hunter Children’s Hospital
New clinical approaches in managing women and girls with bleeding disorders across the lifespan
~ Dr Mandy Davis, Clinical Haematology, Laboratory Haematology, The Alfred, Melbourne VIC
Gynaecological issues for women and girls with bleeding disorders
~ Dr Angela Dunford, Obstetrican Gyanecologist, John Hunter and John Hunter Children’s Hospitals Newcastle, NSW
Sport and exercise for girls and women
~ Hayley Coulson, Physiotherapist Queensland Children’s Hospital, Brisbane, QLD
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1535-1700
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Plenary 2 – Dealing with change
Chair: Sharon Caris
Dr Charlotte Keating is a psychologist, with a PhD in neuroscience, specialising in adolescents and executives. She is a passionate advocate for mental health, particularly for young people. Charlotte is a Member of the Australian Psychological Society and an Associate Member of the College of Clinical Psychologists.
*This session will only be available live, not on-demand*
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