Presentations

FRIDAY 25 AUGUST 2023

0850-1015	Plenary 1 Treatment landscape into the future
	Chair: David Fagan
	From then to now – Gavin Finkelstein What is precision or personalized medicine? New and emerging treatments for all bleeding disorders – Dr Glenn Pierce Australian experience and challenges with new and emerging haemophilia therapies - Dr Liane Khoo Access to new therapies – policy and regulation – Jo Cameron Hopes for the future: reflections from a parent – Clare
1045-1215	Plenary 2 Gene Therapy
	Chair: Prof Huyen Tran
	Overview – Dr Glenn Pierce Psychological overview – Jane Portnoy Overview into AHCDO Gene therapy roadmap – Prof Huyen Tran Q&A
1330-1500	Concurrent 1 The impact of new treatments on children and families
	Chair: Anne Jackson
	The impact of new treatments on children & families - Anne Jackson Impact on practice in the paediatric setting – A Paediatric Nurse’s View - Janine Furmedge Physical activity in children - Nicola Hamilton Young adult and his mother's perspective: Catherine and Lachlan Q&A
1330-1500	Concurrent 2 Rare Bleeding Disorders
	Chair: Dr Jane Mason
	Personal Experience - Chauntelle, FXIII Rare Bleeding Disorders - Dr Sally Campbell Personal experience - Jenny, acquired haemophilia A Acquired haemophilia - Dr Jane Mason Hereditary Hemorrhagic Telangiectasia - Alex Klever Q&A
1330-1500	Concurrent 3 Making Career Choices
	Chair: Penny McCarthy
	Career choices over a lifetime. Do they change with new treatments? – Penny McCarthy Personal Stories How to make career choices - Jon Hazelton Employment: discrimination, disclosure and the law – Mark Waters Personal story - Dale Panel Discussion and Q&A: Speakers and: Nurse: Kara Cordiner Physiotherapist: Abi Polus Social worker: Nicoletta Crollini
1530-1700	Plenary 3 Women and girls with bleeding disorders
	Chair: Dr Meredith Wiggins
	Personal perspectives on the challenges and issues of living with a bleeding disorder Shauna Cheryl Medical perspectives on diagnosis, assessment, treatment and care Gynaecologist: Prof Sonia Grover Haematologist: Dr Briony Cutts Q&A

SATURDAY 26 AUGUST 2023

0845-1015	Plenary 4 Managing Mild Haemophilia
	Chair: Dr Heather Tapp
	Personal perspective from a young adult and his dad - Louis and Tom Diagnosis and treatment – Dr Heather Tapp Mild haemophilia in adults: medical issues – Dr Stephanie P’ng Nursing management, including surgery in mild haemophilia – Alex Klever Physical activities and sport across the lifespan – Abi Polus
1045-1215	Concurrent 4 Inheritance, genetics and family planning
	Chair: Dr Chris Barnes
	Personal story Inheritance and genetics, reproduction and family planning - Geneticist and Genetic Counsellor: A/Prof Kristi Jones and Lucy Kevin Q&A
1045-1215	Concurrent 5 Is it a bleed? MSK recovery
	Chair: Jo Newsom
	Case Study Conditions that can mimic a bleed - Dr Rob Russo Joint bleed recovery – how long does it really take? - Ali Morris Muscle bleed recovery – Jarrad King Q/A panel
1045-1215	Concurrent 6 Getting older
	Chair: Suzanne O’Callaghan
	Personal story - Mike Medical issues - Dr Liane Khoo Hep C and liver health - Dr David Iser Social connection - Marcia Fearn Panel discussion and Q&A: Speakers and Nurse: Jayne Treagust Physiotherapist: Cathy Haley Psychosocial worker: Kathryn Body
1330-1500	Concurrent 7 Pregnancy, childbirth and newborns
	Chair: Dr Jane Mason
	Nursing perspective – pregnancy and delivery management - Robyn Shoemark Delivery and birth – Dr Iniyaval Thevathasan Best practice management of Previously Untreated Patients - Dr Simon Brown Personal Story – Rebecca Q&A
1330-1500	Concurrent 8 VWD
	Chair: Dr Chee Wee Tan
	Personal story - Adam Personal story – Susie VWD diagnosis – Dr Geoffrey Kershaw VWD clinical management - Dr Nalini Pati Q&A
1330-1500	Concurrent 9 Pain
	Chair: Jonathan Spencer
	Pain management in the future – Dr Carolyn Arnold Pain and physiotherapy - Cat Pollard Strategies to manage procedural and acute pain in children – Michelle Perrin Q&A
1530-1700	Plenary 5 Working towards good health

	Beyond resilience comes adaptability: thriving in a changing world - Dr Charlotte Keating Panel - What are the challenges we are facing, moving forward and how to keep connected Dr Glenn Pierce Dr Simon Brown Dr Liane Khoo Dr Chris Barnes Claude Damiani Shauna Adams