Abstracts & Presentations
Following are abstracts and presentations from the 18th Australian & New Zealand Conference on Haemophilia & Rare Bleeding Disorders that can be downloaded.
Conference Program
Abstracts & Handbook
Friday 13 October 2017
Concurrent 1 - Hep C and HIV
Chair: Suzanne O’Callaghan
A personal story of Hep C treatment ~ Simon
Hepatitis C update ~ A/Prof Joe Sasadeusz
HIV clinical update ~ A/Prof Dr Edwina Wright
A personal story about living with HIV ~ Anthony
A personal story of Hep C treatment ~ Simon
Concurrent 2 - Genetic Testing
Chair: Andrew Atkins
The pathway to genetic testing ~ Dr Matthew Hunter
Family planning and the role of the genetic counsellor ~ Carolyn Cameron
Concurrent 1 - Von Willebrand disorder
Chair: Dr Mandy Davis
von Willebrand disorder - diagnosis, treatment and care - Dr Paula James
Living with vWD - my personal story ~ Brendan
Concurrent 2 - Evolving concepts in pain management
Chair: Cameron Cramey
Understanding Pain … in less than 20’ ~ Martina Egan-Moog
Evolving concepts in pain management ~ A/Prof Carolyn Arnold
Clinical application of modern pain sciences for PWBD, an “active approach” ~ Catherine Pollard
Concurrent 3 - Starting the Journey with a child newly diagnosed with a bleeding disorder
Chair: Dr Julie Curtin
Remember, he’s a little boy first… ~ Dr Julie Curtin
Adjusting to diagnosis and the need for family support ~ Moana Harlen
One family’s journey with bleeding disorder ~ Jacqui
Plenary 2 - Prophylaxis
Chair: Dr John Rowell
Australian multicentre study of current real-world prophylaxis practice in severe and moderate haemophilia A and B ~ Dr Jane Mason & ABDR Data analytics ~ Sumit Parikh
Saturday 14 October 2017
Plenary 3 - Women & Bleeding Disorders
Chair: Dr Jenny Curnow
Let’s Talk Period: Women and Bleeding Disorders ~ Dr Paula James
Concurrent 1 - Ageing
Chair: Leonie Mudge
A personal story – living with inhibitors ~ David
Medical matters for people as they are ageing~ Dr Huyen Tran
Issues for PWBD -an overview of NDIS, MyAgedCare~ Leonie Mudge
Insurance and superannuation ~ Josh Mennen
Concurrent 2 - Improving care through MyABDR
Chair: Dan Credazzi
Why do we use MyABDR?~ Dr Chris Barnes
Working with the community~ Suzanne O’Callaghan
A HTC Royal Children’s Melbourne experience ~ Julia Ekert
MyABDR in the clinic and at home
Paediatric - Dr Chris Barnes and Karan
Adult - Andrew Atkins and Michael
Moving Forward with MyABDR ~ Dr Chris Barnes
Concurrent 1- Healthy joints for Life
Chair: Nicola Hamilton
Decision Making in Sport & Physical Activity – Not Everyone Wants to Swim!! ~ Alison Morris
Bleed, Arthritis or Something Else ~ Alison Morris / Abi Polus
Concurrent 2 - Women and telling others
Chair: Sharron Inglis & Kathryn Body
Navigating Employment and Insurance ~ Kim Shaw
Telling others - personal stories
Haemophilia ~ Sharron
VWD ~ Susie
Concurrent 3- Free Papers
Chair: Dr Tina Carter
To Vein or Not to Vein? ~ Robyn Shoemark
A new transition model from the Adult hospital perspective ~ Jane Portnoy and Alex Coombs
Real Benefits of New Therapies for Children with Haemophilia ~ Dr Julie Curtin
Peer Support in Victoria ~ Julia Broadbent and Andrea McColl
Plenary 4 - What’s Here Now and on the Horizon - New Treatment therapies
Chair: Claude Damiani
My experience with an extended half life product ~ Paul
Supply and purchasing, new treatments, cost effectiveness assessment/funding pathways to new medicines ~ John Cahill
Extended half-life factors and other new therapies ~ Dr Huyen Tran
Gene therapy ~ Prof John Rasko