World Haemophilia Day 2022
Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH), which chose 17 April as the day to bring the community together in honour of WFH founder Frank Schnabel’s birthday.
This year the theme is Access for All. The World Federation of Hemophilia, with the support of volunteers from around the world, does remarkable work with developing countries with their GAP and Twinning Programs and the Cornerstone Initiative. HFA is currently connected with the Myanmar Haemophilia Patient Association as a part of the WFH Twinning Program.
Did you know, WFH estimates that over 75% of people living with haemophilia worldwide have not yet been identified and diagnosed.
Haemophilia Foundation Australia is a WFH member organisation and many Australian volunteers have been involved with WFH programs. HFA has supported many programs over the years and participated in the WFH Twinning Program and various committees that work to achieve the objectives of WFH.
We are grateful that our community has access to high quality treatment but we recognise that many other parts of the world do not have access to diagnosis, treatment and care. Together as Australians, let’s take this opportunity to recognise this special day and put our support behind the worldwide effort for Access for All.
“The more people that raise awareness, the more it helps get the message out.” - Adam's story.
Mothers, siblings, physios and people with bleeding disorders share their experience and highlight the importance of Access for All.
Light It up Red
We have many locations and landmarks over Australia Lighting up Red in support of World Haemophilia Day. There are more to come, keep an eye out and share photos on our social media platforms.
Royal Australian Mint
Newcastle City Hall Clock Tower
Westmead Childrens - Factor Zone (Lights shinning bright during business hours, not over Easter weekend)
Darwin Convention Centre
Parliament House, Brisbane
Brisbane City Town Hall
Ipswich Civic Centre
Water Towers, Logan
Treasury Casino, Brisbane
Reddacliff Place sculptures
Wickham Terrace Car Park architectural wall
Breakfast Creek Bridge, Newstead
Court House Gallery, Cairns
Heritage Façade Council building, Rockhampton
Town Hall Warwick Clock Face
Warwick Town Hall roof lights
Stanthorpe Administration Building
Victoria Bridge, Toowoomba
Victoria Bridge, Townsville
Wharton Reef Lighthouse, Townsville
George Roberts Bridge, Townsville
Old Magistrates Court House, Townsville
Central Park Boardwalk, Townsville
Little Fletcher Bridge, Townsville
CBD Tree Lights, Maranoa
The New Riverbank Lighting Feature
Adelaide Oval (Monday 18 Apr)
Launceston Town Hall
Geelong intersection Moorabool & Malop St Geelong
Bolte Bridge Melbourne
Drum Theatre Dandenong
Ballarat Town Hall Clock and Fountain
The Bell Tower
Mount Bridge Tunnel
Colour in Sheet
Date last reviewed: 11 April 2022