World Haemophilia Day 2022

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
 
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH), which chose 17 April as the day to bring the community together in honour of WFH founder Frank Schnabel’s birthday.
 
This year the theme is Access for All.  The World Federation of Hemophilia, with the support of volunteers from around the world, does remarkable work with developing countries with their GAP and Twinning Programs and the Cornerstone Initiative. HFA is currently connected with the Myanmar Haemophilia Patient Association as a part of the WFH Twinning Program.
  
Did you know, WFH estimates that over 75% of people living with haemophilia worldwide have not yet been identified and diagnosed.  
 
Haemophilia Foundation Australia is a WFH member organisation and many Australian volunteers have been involved with WFH programs. HFA has supported many programs over the years and participated in the WFH Twinning Program and various committees that work to achieve the objectives of WFH.
 
We are grateful that our community has access to high quality treatment but we recognise that many other parts of the world do not have access to diagnosis, treatment and care. Together as Australians, let’s take this opportunity to recognise this special day and put our support behind the worldwide effort for Access for All.
 
Community Stories
 
“The more people that raise awareness, the more it helps get the message out.” - Adam's story.

Mothers, siblings, physios and people with bleeding disorders share their experience and highlight the importance of Access for All.
 
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Adam's Story
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Angelina's Story
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Twinning Stories
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Leah's Story
 
Light It up Red
We have many locations and landmarks over Australia Lighting up Red in support of World Haemophilia Day. There are more to come, keep an eye out and share photos on our social media platforms.



ACT
Shine Dome
Royal Australian Mint
The Carillion

NSW
Newcastle City Hall Clock Tower
Westmead Childrens - Factor Zone (Lights shinning bright during business hours, not over Easter weekend)

NT
Darwin Convention Centre

QLD
Parliament House, Brisbane 
Brisbane City Town Hall
Ipswich Civic Centre
Water Towers, Logan
Treasury Casino, Brisbane
Story Bridge
Victoria Bridge
Reddacliff Place sculptures 
Wickham Terrace Car Park architectural wall 
Breakfast Creek Bridge, Newstead
Court House Gallery, Cairns
Kurilpa Bridge
Heritage Façade Council building, Rockhampton 
Town Hall Warwick Clock Face
Warwick Town Hall roof lights 
Stanthorpe Administration Building 
Victoria Bridge, Toowoomba
Victoria Bridge, Townsville
Townsville Sign
Wharton Reef Lighthouse, Townsville
George Roberts Bridge, Townsville
Old Magistrates Court House, Townsville
Central Park Boardwalk, Townsville
Little Fletcher Bridge, Townsville
Gateway Bridge
CBD Tree Lights, Maranoa
Sandgate Townhall

SA
The New Riverbank Lighting Feature
Adelaide Oval (Monday 18 Apr) 

TAS
Launceston Town Hall

VIC
Geelong intersection Moorabool & Malop St Geelong
Bolte Bridge Melbourne
Drum Theatre Dandenong
Ballarat Town Hall Clock and Fountain

WA
Optus Stadium 
The Bell Tower
Mount Bridge Tunnel
Sky Ribbon
Mandurah bridge
 
Fun Activities 

Colour in Sheet 


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Profile Picture 
 
Date last reviewed: 11 April 2022