Haemophilia Foundation
Australia
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Ben – a father’s perspective
Mindi Palm - Living like a Swede
Poppa and Roman share a special bond
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Tim - young person with haemophilia
Alan - telling others
Shauna - sharing her life experience living with a bleeding disorder
Stories by Young People
Women
Jane's story - genetic testing for haemophilia
Sharron - A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia
Susie ~ Disclosure and telling others
Haemophilia - Do You Catch It?
Haemophilia - when your daughters bleed too
Haemophilia - All in the Family
Susie – living with type 1 von Willebrand disorder
Living with haemophilia
Growing Older with Haemophilia ~ Jason
Living with VWD
Living life actively with VWD
VWD – Down the generations
Susie – living with type 1 von Willebrand disorder
Shauna Adams – managing type 3 VWD
Connection & Peer Support
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Overcoming Challenges
Sharing Knowledge
Family & Community Camps
Getting Older
Mike - older person with haemophilia
Hepatitis C
Turning liver health around after hep C – Jake’s story
Clearing hep C as a child - John's story
Finally cured of hep C - Gavin's story
Women can have hep C too - Mary Jane's story
Hep C - I am cured [video]
Anth's treatment story
Simon's treatment story
Len's treatment story
Paul's treatment story
David's treatment story
Share your story
Disclosure
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Planning For The Future
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Resilience - David and Zev and Mike
For Health Professionals
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ABDR & MyABDR
ABDR
What is MyABDR
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Factored In - youth website
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Colouring in fun!
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Publications
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Information Resources
Bleeding Disorders
Haemophilia
Newly Diagnosed
Haemophilia booklets & fact sheets
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Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Sport
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Von Willebrand Disease
Women with Bleeding Disorders
Young women
Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Telling others
Sport and exercise for young women
Young People
Getting older
Getting Older Hub
For health professionals
Hepatitis C
Hep C Fact Sheets
Personal Stories
For health professionals
Sport and Exercise
On the move with haemophilia
Welcome to On the Move with Haemophilia
About haemophilia
Exercise and haemophilia
Exercise and sports
Factors to consider
Warm ups and cool downs
Protection
Managing bleeds and injuries
Recovery and rehabilitation
Tips for parents, teachers, coaches and friends
Ordering HFA print publications
For Health Professionals
Nursing
Getting Older
Hepatitis C
National Haemophilia Journal
Videos & Webinars Library
Bleeding Disorders Awareness Month 2022
Travel Tips Webinar
New Therapies Webinar
Choosing or changing your career path Webinar
Your rights: superannuation and insurance webinar
Conference 2021
Adapting to Change - World Haemophilia Day 2021
Bleeding Disorders Awareness Week 2020
Youtube
Reports & Policy
Young People
Getting Older
Getting Older full report
Hepatitis C
Annual Reports
Promotional Resources
Awareness Newsletters
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PROBE study
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Events & Conferences
Events
Bleeding Disorders Awareness Month
Resources & Fun Activities
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World Haemophilia Day 2023
Organise Your Own Event
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Past Events
Conferences
2023 Conference
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Social Activities
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Abstract Submission Form
Young People
Venue & Accomodation
Other Information
Mythbusting Animation Workshop
Sponsors
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Health Professional Meetings
2021 Conference
Presentations
Plenary 1 - The changing world of bleeding disorders
Concurrent 1 - Managing bleeds under current new treatments
Concurrent 2 - Von Willebrand disease
Concurrent 3 - Sex, sexuality and intimacy
Concurrent 4 - Women and girls
Plenary 2 - Dealing with change
Plenary 3 - Pain
Concurrent 5 - Making the most of your health virtually
Concurrent 6 - Getting stronger safely
Concurrent 7 - Youth - challenges, taboos and myths
Concurrent 8 - Getting older
Plenary 4 - Where to from here?
Remembrance Service
Program
Sponsors
2019 Conference
Abstracts & Presentations
Program
Sponsors
2017 Conference
Abstracts & Presentations
Sponsors
Program
2015 Conference
Abstracts and Presentations
2011 Conference
Abstracts and Presentations
2009 Conference
Abstracts and Presentations
2007 Conference
Event Listing
Support Us
Donate
Donate Now
Ways to Give
A Reason to Give
Give Monthly
A Gift in your Will
Give in Celebration
Give in Memory
Fundraise for Us
COVID-19
Site Map
Home
About Us
Who We Are
What We Do
Our Advocacy Work
Our Council
Meet the Staff
Our Supporters
Contact Us
About Bleeding Disorders
Latest Information
Fast Facts
FAQs
View All FAQs
Haemophilia - General Questions
FAQs-Children
FAQs-Von Willebrand Disease
FAQs-Women
Haemophilia
About haemophilia
Severity and symptoms
Haemophilia diagnosis
Haemophilia treatment
Haemophilia inheritance
More Info
Newly diagnosed with haemophilia
Your child has haemophilia
About haemophilia
What to expect
Who can help
More info
Von Willebrand Disease
About VWD
VWD symptoms
VWD inheritance
VWD diagnosis
VWD treatment
More Info
Women with Bleeding Disorders
The Female Factors
Self-advocacy for women
Haemophilia and carrying the gene
About haemophilia in females
Haemophilia symptoms in females
Haemophilia genetic testing
Family Planning
Pregnancy
Tips
References
VWD in females
What is VWD?
VWD symptoms in females
Diagnosing VWD
VWD treatment in females
Lifetime Changes
More Info
References
Personal stories
Other women's resources
Youth with Bleeding Disorders
Other Bleeding Disorders
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Acquired haemophilia
Gene Therapy
Gene therapy for haemophilia
Types of gene therapy
Genes
How gene therapy works
Having gene therapy
Clinical trials for gene therapy
Gene therapy FAQs
More info
Sources and reviewers
Hepatitis C & HIV
Hepatitis C
HFA hepatitis C strategy
Double Whammy Report
Getting It Right evaluation
Hep C Resources
Hep C Treatments
Hep C Personal Stories
Terry's Story 2010
Ben's Story 2010
Les's Story 2009
Telling others about hep C
World Hepatitis Day
HIV
HIV and Bleeding Disorders
Living with HIV
40 years of HIV - where to next?
Living with a Bleeding Disorder
Personal Stories
HFA YouTube Channel
Newly Diagnosed
Parents and Families
Accessing treatment - Leah's story
Ben – a father’s perspective
Mindi Palm - Living like a Swede
Poppa and Roman share a special bond
Growing up with a bleeding disorder
Youth
Tim - young person with haemophilia
Alan - telling others
Shauna - sharing her life experience living with a bleeding disorder
Stories by Young People
Women
Jane's story - genetic testing for haemophilia
Sharron - A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia
Susie ~ Disclosure and telling others
Haemophilia - Do You Catch It?
Haemophilia - when your daughters bleed too
Haemophilia - All in the Family
Susie – living with type 1 von Willebrand disorder
Living with haemophilia
Growing Older with Haemophilia ~ Jason
Living with VWD
Living life actively with VWD
VWD – Down the generations
Susie – living with type 1 von Willebrand disorder
Shauna Adams – managing type 3 VWD
Connection & Peer Support
Connecting to others
Overcoming Challenges
Sharing Knowledge
Family & Community Camps
Getting Older
Mike - older person with haemophilia
Hepatitis C
Turning liver health around after hep C – Jake’s story
Clearing hep C as a child - John's story
Finally cured of hep C - Gavin's story
Women can have hep C too - Mary Jane's story
Hep C - I am cured [video]
Anth's treatment story
Simon's treatment story
Len's treatment story
Paul's treatment story
David's treatment story
Share your story
Disclosure
Disclosing and the law
Health conditions
When are you required to disclose
Getting advice
References
Travel
Travel tips
Getting Older Hub
Safety and Supply
Overview
vCJD
Advisories, Alerts & Recalls
Support & Services
State & Territory Foundations
Treatment Services
Getting Older Hub
Health & Wellbeing
Exercise, arthritis and balance
Bleeding problems
Pain
Mental wellbeing
Surgery and joint replacement
Working with your GP
Personal experiences
Health-wellbeing articles
Gum bleeding in haemophilia
Blood in the urine - haematuria
Arthritic knee pain and exercise
Services For Getting Older
Services-articles
Understanding disability and aged care services
Do I have a disability?
Getting started
Disability support and services
Transition from NDIS to aged care
Transitioning to the Age Pension
Aged care support and services
Where to get more help
Aged care services and homes
Living independently
Short-term care
Aged care homes
Costs of care in an aged care home
Disability
Carers
Work & Finances
Concession cards
Financial planning and management
Working
Support
Support-articles
Taking care of yourself
Recreation & Travel
Travel tips
Travel stories
Gavin's outback camping story
Your travel story?
Planning For The Future
Planning-Future articles
Take control
Power of attorney
Connect To Others
Personal experiences
Perry and living with VWD
Mike and getting older
Zev and Mike and staying active
Resilience - David and Zev and Mike
For Health Professionals
International Haemophilia Links
Other Links
ABDR & MyABDR
ABDR
What is MyABDR
Why use MyABDR?
MyABDR Updates
Privacy Consent
Background
Have Your Say
MyABDR Feedback
Youth
Factored In - youth website
Understanding Youth Needs
Overview
Consultation
Results
Recommendations
Youth News
Kids
Colouring in fun!
Livewire
Health Professional Groups
Awards
DCMEF
Publications
News
HFA Annual Report 2021-2022
Season's Greetings 2022
December 2022 National Haemophilia now available
Haemophilia treatment fact sheets survey
December 2022 Newsletter
Today is World AIDS Day
Fiona shares her VWD story
Webinar Recordings available online
HFA Video Challenge
We’re excited to kick off Bleeding Disorders Awareness Month today!
September 2022 National Haemophilia now available
Bleeding Disorders Awareness Month Promotional Items orders
World Hepatitis Day 2022
DCMEF Awards now open
Research Fund Grants Open
Men's Health Week
Today is World Haemophilia Day
New women's education resource
Twinning and Access for All - World Haemophilia Day 2022
On the Move with Haemophilia
2021 Conference on demand
World Haemophilia Day is in 1 month
World Congress 2022
Rare Disease Day 2022
Season's Greetings
Getting Older Info Hub survey prize draw
World AIDS Day 2021
Getting Older Info Hub Survey
COVID-19 vaccine FAQs updated
COVID-19 vaccine FAQs
COVID-19 vaccine FAQs updated
Today is the start of Bleeding Disorders Awareness Week
National Haemophilia - September 2021
Ask Your Questions
Virtual Youth Workshops
Celebrating Women's Health Week
Female Factors survey prize draw
Female Factors survey 2021
World Hepatitis Day 2021
ABDR MyABDR Privacy Consent
Conference abstract deadline extended
Are you getting your e-news?
Girls and sport fact sheet
Webinars Recordings
World Haemophilia Day 2021
COVID-19 vaccine update
2021 Australian Conference
Rare Disease Day 2021
HFA Research Fund grants round open
Season's Greetings!
World AIDS Day 2020
Update on new treatment options
Hemlibra update
Today is the start of Bleeding Disorders Awareness Week
Hemlibra to be publicly funded
It's R U OK day today
Women’s Health Week Quiz
Covid-19 restrictions Victoria
World Hepatitis Day
HFA office during COVID-19
Getting Older community report
NBA EHL treatment tender announced
Getting Older Info Hub
HFA Getting Older report
WFH Virtual Summit
Message from HFA Exec Dir
VWD guidelines feedback extended
Happy World Haemophilia Day
WFH Medical News
VWD clinical guidelines feedback
COVID-19 update
Coronavirus update
Coronavirus
HFA Office
Rare Diseases Day
Getting Older community survey
Australian bushfires
PROBE study
Season's Greetings!
World AIDS Day 2019
New gene therapy resource
HFA phones are down
Bleeding Disorders Awareness Week
Female Factors survey prize draw
PROBE study
Female Factors evaluation survey
World Hepatitis Day
MSAC application for Hemlibra
World Haemophilia Day
New hepatitis C treatment
HFA Research Fund
Team.Factor in 2019
Team.Factor in Challenge Tour
Rare Disease Day
New resource - Telling others
Gene therapy resource survey
EHL Clotting Factor Products News
Go For It grants announced!
World AIDS Day
Youth Canoe Journey postponed
New young women's resource
Today is the start of Bleeding Disorders Awareness Week
VWD - why the change?
Go for it Grants closing date extended
Youth Canoe Journey applications extended
New hep C treatment
Female Factors Survey prize draw
The Female Factors booklets survey
Today is World Haemophilia Day
Rare Disease Day 2018
Vale Sir Ninian Stephen
Team.Factor rides again
Season's Greetings
Today is World AIDS Day
New hep C treatment for PBS
Gene therapy breakthrough for haemophilia
MyABDR remember me function
Today is World Hepatitis Day
Launch of newly diagnosed folder
New HFA women's booklet
World Haemophilia Day
Private health insurance survey
MyABDR user survey
Red Tie Challenge
Hear Their Voices
Celebrate Rare Diseases Day!
Haemophilia treatment survey
Go For It Grants extended
Team Factor rides again in 2017!
HFA Annual Report 15/16
World AIDS Day 2016
Team Factor rides again!
PBAC Approves New Hep C Treatment
vCJD Update (19/02/09)
Good news about hep C treatment for people with haemophilia
Melbourne for 2014 World Congress
Recombinant factor VIII tenders
Vale Peter Mathews
In His Own Words
MyABDR project
MyABDR Survey
MyABDR now live!
MyABDR – a world first!
Hep C – out of pocket costs
New hep C treatments - your views
National Clotting Factor Treatment Product Tender
AIDS 2014 in Melbourne
Hep C news
New government inquiry into hep C
Hep C – help us with the government inquiry
Hep C Inquiry - make your voice heard
Hep C update
World Haemophilia Day
PBAC decision on new hep C drugs
HFA National Community Survey
World Hepatitis Day
Hep C Inquiry report released
World AIDS Day
Team Factor Rides Again!
Haemophilia Awareness Week
The Female Factors new booklet
World Haemophilia Day 2016
New haemophilia clinical management guidelines
Access to New Hep C Drugs
World Hepatitis Day 2016
Rare Disease Day
New Hep C Drugs to go on PBS
Time to Take Action on New Hep C Cures
HFA National Community Survey
Survey Prize Draw Winners
January 2023 Newsletter
February 2023 Newsletter
2023 Conference - Save the Date
Updated Employment Information
Rare Disease Day 2023
International Women's Day 2023
March 2023 National Haemophilia now available
World Haemophilia Day 2023
Careers Week 2023
Mythbusting Animation Workshop during Conference
Information Resources
Bleeding Disorders
Haemophilia
Newly Diagnosed
Haemophilia booklets & fact sheets
Mild Haemophilia
Living with Mild Haemophilia
Haemophilia guide updates
Registration successful
Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Sport
Gene therapy
Von Willebrand Disease
Women with Bleeding Disorders
Young women
Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Telling others
Sport and exercise for young women
Young People
Getting older
Getting Older Hub
For health professionals
Hepatitis C
Hep C Fact Sheets
Personal Stories
For health professionals
Sport and Exercise
On the move with haemophilia
Welcome to On the Move with Haemophilia
About haemophilia
Exercise and haemophilia
Exercise and sports
Factors to consider
Warm ups and cool downs
Protection
Managing bleeds and injuries
Recovery and rehabilitation
Tips for parents, teachers, coaches and friends
Ordering HFA print publications
For Health Professionals
Nursing
Getting Older
Hepatitis C
National Haemophilia Journal
Videos & Webinars Library
Bleeding Disorders Awareness Month 2022
Travel Tips Webinar
New Therapies Webinar
Choosing or changing your career path Webinar
Your rights: superannuation and insurance webinar
Conference 2021
Adapting to Change - World Haemophilia Day 2021
Bleeding Disorders Awareness Week 2020
Youtube
Reports & Policy
Young People
Getting Older
Getting Older full report
Hepatitis C
Annual Reports
Promotional Resources
Awareness Newsletters
Research
Research Fund
Research Fund Grants
PROBE study
PROBE study
About PROBE
Phase 1
Phase 2
Real-world (Phase 3)
Getting Older Project
Overview
Needs assessment
Community Survey
Digital solutions
More information
Getting Older Community Survey
Participating in Research
Clinical Research
Social Research
Market Research
Questions to Ask
Complaints
Events & Conferences
Events
Bleeding Disorders Awareness Month
Resources & Fun Activities
Webinars
World Haemophilia Day 2023
Organise Your Own Event
Fundraise for Us
Past Events
Conferences
2023 Conference
Registration
Community Funding
Funding Form
Program
Social Activities
Poster Abstracts
Abstract Submission Form
Young People
Venue & Accomodation
Other Information
Mythbusting Animation Workshop
Sponsors
Conference Organisers
Health Professional Meetings
2021 Conference
Presentations
Plenary 1 - The changing world of bleeding disorders
Concurrent 1 - Managing bleeds under current new treatments
Concurrent 2 - Von Willebrand disease
Concurrent 3 - Sex, sexuality and intimacy
Concurrent 4 - Women and girls
Plenary 2 - Dealing with change
Plenary 3 - Pain
Concurrent 5 - Making the most of your health virtually
Concurrent 6 - Getting stronger safely
Concurrent 7 - Youth - challenges, taboos and myths
Concurrent 8 - Getting older
Plenary 4 - Where to from here?
Remembrance Service
Program
Sponsors
2019 Conference
Abstracts & Presentations
Program
Sponsors
2017 Conference
Abstracts & Presentations
Sponsors
Program
2015 Conference
Abstracts and Presentations
2011 Conference
Abstracts and Presentations
2009 Conference
Abstracts and Presentations
2007 Conference
Event Listing
WFH 2016 World Congress
Red Classic
Bleeding Disorders Awareness Week & Red Cake Day 2017
World Hepatitis Day 2017
18th Australian & New Zealand Conference on Haemophilia & Rare Bleeding Disorders 2017
World Haemophilia Day 2017
Rare Disease Day 2017
Red Tie Challenge
WFH 2018 World Congress
Bleeding Disorders Awareness Week
World Hepatitis Day
Red Classic 2018
19th Australian Conference on haemophilia, VWD & rare bleeding disorders
Bleeding Disorders Awareness Week
World Haemophilia Day
HFACT Camp
WFH 2020 World Congress
World Haemophilia Day 2020
Bleeding Disorders Awareness Week
Baking Red Cupcakes
Children and Young People and keeping fit
Getting Older and Exercising
Bombardier Blood documentary live chat with special guest Chris Bombardier
World Haemophilia Day 2021
20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders
Bleeding Disorders Awareness Week 2021
Red Classic (virtual)
Get out of your head! Free virtual workshop for youths aged 10-30
World Haemophilia Day 2022
WFH 2022 World Congress
Bleeding Disorders Awareness Month
World Haemophilia Day 2023
World Hepatitis Day
World AIDS Day
Thursday 6 October ~Travel Tips Webinar
Travel Tips Webinar
New Therapies Webinar
Webinar - Choosing or changing your career path
Your rights Superannuation and Insurance Webinar
2023 Australian Conference
Bleeding Disorders Awareness Month
Support Us
Donate
Donate Now
Ways to Give
A Reason to Give
Give Monthly
A Gift in your Will
Give in Celebration
Give in Memory
Fundraise for Us
COVID-19
COVID-19 vaccine FAQs