Items tagged 'National Haemophilia Journal'

Glanzmann thrombasthenia is a very rare hereditary platelet function disorder that affects the way that platelets work in the body.
The Australian Haemophilia Centre Directors' Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.
What events are coming up on the bleeding disorders calendar?
The team has changed recently at HFA. Natashia Coco has taken on the role of Executive Director (Acting) and we welcome Pauline Hill as our Digital Communications Manager.
The 2024 funding round for the Damon Courtenay Memorial Endowment Fund (DCMEF) is now open.
As a FIFO, what do you need to think about to manage your bleeding disorder when you are onsite?
Another exciting year ahead and the HFA staff have hit the ground running in 2024.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Over the past year the HFA team, together with our website developer, Heartburst, have been designing and building a new website for haemophilia.org.au. Check it out - and let us know if you find anything broken!
Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

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