BIANCA DA SILVA
Bianca Da Silva is Head of Department, Paediatric Physiotherapy, John Hunter Children’s Hospital, Newcastle, NSW.
Moderator ~ Cindy Bailey, USA
Speakers ~ Eric Chang, USA; Carlo Martinoli, Italy; Annette von Drygalski, USA
And laboratory instructors and panellists
My first day at WFH 2024 World Congress consisted of a full day ultrasound workshop at the Professional Development Day, with the focus on teaching how to detect the presence or absence of a bleed (largely in the joint spaces) using point-of-care ultrasound (PoCUS), which is used routinely in some Haemophilia Treatment Centres in the United States of America.
PoCUS is done at the bedside (i.e., point of care) by using portable ultrasound equipment to support a clinical assessment, with the idea that pain can be used in early identification to detect the presence or absence of a bleed. It does not replace current imaging that Haemophilia Treatment Centres are currently using such as ultrasound, CT or MRI that are performed by radiologists. It was demonstrated that it can also be used in the clinical setting to monitor the progression of a bleed, and how to use doppler imaging to assist with clinical decision making in whether a person with a bleeding disorder can consider returning to sporting activity.
There was a particular focus on hands-on practice and teaching, with a number of skilled haematologists and physiotherapists/physical therapists teaching small groups how to use different musculoskeletal placements of the ultrasound transducer to identify bony and soft tissue landmarks, and how it would theoretically look in the presence of a bleed. There was also discussion about the results of a recent pilot study performed by the University of California San Diego, where patients were trained to be able to remotely perform joint self-images using a portable ultrasound device guided by a clinician utilising Telehealth. This demonstrates a possibility and future direction for the use of ultrasound in haemophilia care.
And then the Congress sessions began! There were different tracks/streams at the conference including medical, PWBD (people with bleeding disorders), MSK (musculoskeletal), dental, psychosocial, WGBD (women and girls with bleeding disorders), nurses and lab sciences. As a physiotherapist, I largely attended the musculoskeletal track, however there were a number of interesting sessions across the conference that regrettably I was unable to attend. This further reinforces the diversity of topics and different areas to consider in management of haemophilia as a person with a bleeding disorder or a clinician involved in patient care.
L-R: Dr Janis Chamberlain, Bianca Da Silva and Jaime Chaise with their poster, ‘Out of the joint and into the muscle’
Moderator ~ Greig Blamey, Canada
Speakers ~ Adolfo Llinas, Colombia; Luigi Solimeno, Italy
And discussion leaders
An additional highlight during the conference was the optimising musculoskeletal management for people with bleeding disorders session. During this session, attendees were able to work in small groups with a haematologist, orthopaedic surgeon and physiotherapist/physical therapist supporting each group as case studies were discussed, and then a greater discussion was conducted as a larger group. The ability to brainstorm and discuss cases with different clinicians from around the world was extremely valuable.
Chair ~ Cindy Bailey, USA
Speakers ~ Hazri Aris, Malaysia; Manuel Rodríguez López, Spain; Clive Smith, UK; Olaf Versloot, Netherlands
The final session on game changing health: bridging new treatment, sports and everyday living was uplifting. It reinforced the importance of working closely with people with bleeding disorders to support them to achieve their desired goals. Hazri Aris and Clive Smith shared their experiences and physical endeavours including their challenges, and reflected on the future and changes to treatments and what this may mean for people with bleeding disorders.
Bianca Da Silva was assisted by funding from HFA and the Dr Ho MSK Scholarship, John Hunter Children’s Hospital, to attend the WFH 2024 World Congress.
Photos: Bianca Da Silva
Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.
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