No 228 December 2024

National Haemophilia December 2024 cover

Thanks to everyone who participated in Bleeding Disorders Awareness Month in October 2024. It was an amazing national celebration. We share a gallery of pictures of red events from around Australia. We also look at why you should stay in contact with your HTC and managing a range of lifetime experiences – travelling with severe haemophilia, growing up with VWD, negotiating the classroom and preparing for endoscopy. We also mark World AIDS Day, an important day for our community.

In this issue

Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet - symptoms, types, inheritance, diagnosis and treatment.
As we wrap up 2024, HFA reflects on our achievements in new therapies, hep C advocacy and support during the year.
In October 2024 we came together to raise awareness about haemophilia, VWD and other rare bleeding disorders.
In October 2024 people around Australia wore red and shared red food to raise awareness about bleeding disorders.
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
New staff at HFA and AHCDO! Alison Armstead at HFA - fundraising/event management; Dr Sally Campbell at AHCDO -Clinical Research Consultant.
How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.
In 2024 World AIDS Day asks us to be proactive in awareness and support for community members living with HIV, with the theme 'It starts with me'.
Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

The HFA Council and Staff wish you a happy and safe festive season. Thank you for your support during 2024…

What's coming up in bleeding disorders?

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