No 199 September 2017

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SA representation

SHARON CARIS

Sharon Caris is HFA Executive Director

   

Griff Farley Paul Bonner

Griff Farley and Paul Bonner

The Haemophilia Foundation Australia (HFA) Council is keen to stay connected with the South Australian bleeding disorders community, and continues to look for opportunities to rebuild connections in the community. We hope there will be interest and commitment to re-establishing an organisation to provide peer support, information and education at a local level for families affected by bleeding disorders in time. 

TREATMENT AND CARE

HFA maintains strong contacts with specialist health professionals at the Haemophilia Treatment Centres at the Royal Adelaide Hospital and the Womens’ & Children’s Hospital in Adelaide and is pleased that high quality treatment and care is available to the community around the state. The move to the new Royal Adelaide Hospital commenced at the end of August, and everyone looks forward to seeing the new facilities first hand.

We appreciate the strong input of doctors, nurses and physiotherapists from each of the Centres in work to improve treatment and care for all Australians affected by bleeding disorders through special interest health professional group leadership and membership and through their generous contribution to HFA activities. Behind the scenes haemophilia health professionals from around the country, including from South Australia, contribute to the development of HFA’s education resources and programs and policy development. We are grateful for their commitment and time to this work because it benefits the whole bleeding disorders community.

The South Australian community is represented at regular Haemophilia Treatment Network meetings where haemophilia health professionals, data managers and health department officials meet to address new issues relating to treatment and care. Paul Bonner has been a long time community advocate in South Australia, and last year Griffin Farley stepped up to help represent the community at the Haemophilia Treatment Network meetings after Sharyn Wishart moved to the country. Sharyn had been a strong community representative and had also represented HFSA on the HFA Council alongside Rob Christie, then Paul Bonner for several years before HFSA wound up.

COMMUNITY EVENTS

In the meantime, HFA is keen to keep the South Australian community connected with the national bleeding disorders network.  We will continue to run a local event or community meetings in South Australia at least once each year, but we do hope there may be opportunity to increase this.

CONFERENCE

All South Australians are welcome to attend the 18th Australia and & New Zealand Conference on Haemophilia & Rare Bleeding disorders 12 -14 October 2017. We have already provided funding to some South Australians to attend, but if you would like to attend and need some financial assistance please contact HFA on hfaust@haemophilia.org.au or phone 1800 807 173 for further information – there is still some funding available, but you will need to be quick!

HFA AGM AND COUNCIL

Paul Bonner and Griffin Farley will be in attendance at HFA’s upcoming Annual General Meeting and Council Meeting in October which runs immediately after the Conference, to represent the South Australian perspective. If you have any issues or concerns that you think should be considered by the HFA Council please email Paul on paulbonner1@bigpond.com or Griffin at griff.farley@gmail.com so they can raise them at the Council meeting. We will make sure you are advised of the outcomes of the Council meeting and any specific discussions about the issues you have raised. 

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Date last reviewed: 21 September 2017