No 201 March 2018

Team.Factor was ready to ride in the 2018 BUPA Challenge Tour for its 6th year, but unfortunately the race day…

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia Hepatitis C is once again in the news. The UK government…

Every April 17 World Haemophilia Day is recognised worldwide to increase awareness of haemophilia and other inherited bleeding disorders. This…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager For a long time gene therapy has been hailed…

SHARON CARIS Sharon Caris is HFA Executive Director We are seeing many new opportunities for community consultation about treatment products. …

On 28 February 2018, people living with or affected by a rare disease, patient organisations, politicians, carers, medical professionals, researchers…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Between September 2016 and February 2017 HFA took part…

Beryl and Alex at Queensland Haemophilia Centre Beryl Zeissink was interviewed by Suzanne O'Callaghan, HFA Beryl Zeissink is Clinical Nurse…

HAYLEY COULSON Hayley Coulson is the Haemophilia Physiotherapist at the Lady Cilento Children’s Hospital, Brisbane The ankle is one of…

SCOTT RUSSELL Scott Russell is the Haemophilia Physiotherapist at the Royal Brisbane and Women’s Hospital For many people with haemophilia…

ANTH MCCARTHY Anthony McCarthy is an Australian community member with haemophilia A I’m glad to say that hep C and…

SHARRON INGLIS Sharron Inglis is Vice-President, Haemophilia Foundation Victoria and has haemophilia A PEER SUPPORT FOR WOMEN IN A LOCAL…

Two new staff members joined the HFA team in February 2018. LITSA BANTROUHAS With her considerable experience in fundraising and…

We are very pleased to announce that the new HFA folder Haemophilia – a guide for parents of a newly…

In 2018 there will be further development of MyABDR as part of the National Blood Authority Crimson Project. HFA is…

Emily’s Higher Education Journey Congratulations to everyone who has recently started, or will soon be starting their higher education journey!…

Look out for details about the next Information Evening to be held in Adelaide for the bleeding disorders community. We…

The Haemophilia Foundation Australia Research Fund funding round for 2018–2019 is now open.  The closing date for applications is 30…