Newly diagnosed folder

We are very pleased to announce that the new HFA folder Haemophilia – a guide for parents of a newly diagnosed child is now available.

The folder was launched in October 2017 at the Kidz Factor Zone, The Children's Hospital at Westmead, Sydney. Dr Julie Curtin, the Haemophilia Treatment Centre Director, was one of the expert reviewers of the folder and presented the folder to a group of parents and health professionals at the launch.

Julie Curtin and parent with folder

Launch of newly diagnosed folder
Launch at the Kidz Factor Zone
Photos: The Children's Hospital at Westmead

The Guide explains haemophilia and how it is managed in plain language for parents who are new to haemophilia, with diagrams, and personal stories, tips and photos from other Australian parents. It also includes two quick reference cards:

 
  • An emergency checklist for when a parent suspects a bleed 
  • Information on how to recognise a bleeding episode in a small child.
 
The folder will be distributed to parents and caregivers through Haemophilia Treatment Centres and is also available for downloading from the HFA website – www.haemophilia.org.au/newly-diagnosed.
 
We would like to thank the HFA parent and health professional review groups for generously giving their expertise and creative input to the development of the folder. We would also like to acknowledge to the parents of children with haemophilia from our bleeding disorders community who contributed personal stories, quotes and photos.

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