No 202 June 2018

MyABDR

What’s coming up?

FROM THE NATIONAL BLOOD AUTHORITY AND HFA MYABDR TEAMS

MYABDR TIPS

Some people are coming back to using MyABDR after being on a clinical trial or starting to use MyABDR for the first time. What tips do regular MyABDR users have for new users? Michael, a MyABDR user from South Australia, had this to offer:

My favourite features are:

  • 4-digit pin access code for log in
  • Easy-to-track stock levels
  • Simple user interface for recording bleeds

My tips for new users or people coming back to it are:

  • Get into the habit of bringing your device with you when injecting so it's right there and you don't forget.
  • Put the app on your device’s front screen so it's always in sight. Even subconsciously you will see it and this helps to remind you to use it. 

WHAT HAPPENS TO YOUR USER FEEDBACK?

As part the ongoing work to improve MyABDR, HFA and the National Blood Authority (NBA) regularly seek feedback from MyABDR users about changes they would like to see to the app or website. You may recall, for example, the MyABDR user survey in June-July 2017. These become “change requests”. 

Change requests can also come from other sources. For example, users can give feedback directly to the MyABDR Support Team or HFA or local Foundations, who then pass them on. Haemophilia Treatment Centres (HTCs) can make recommendations based on their patients’ experiences. There are also change requests from the NBA to deal with bugs, data reporting, security and functionality issues. 

These change requests go through a process of assessment and prioritisation with input of representatives from HFA and HTCs, as well as technical review by developers and business analysis at the NBA. HFA also has a MyABDR focus group of users who sometimes provide feedback on specific requests or proposed solutions. 

During this process, the proposed changes are reviewed for approval by the Australian Bleeding Disorders Registry Steering Committee. The Committee’s membership includes the Australian Haemophilia Centre Directors’ Organisation, HFA, the NBA and a federal and state government representative. It deals with issues such as privacy, ethics, data accuracy and system development.

UPCOMING ENHANCEMENTS

You will be pleased to hear that – with a lot of work behind the scenes to assess the current change requests – more improvements are planned for MyABDR over the next 18 months.

The NBA has compiled a list of change requests and new functionality/enhancements and will commence a project to update the MyABDR system in latter half of 2018 and 2019.

Stay tuned for more details! 

ANY QUESTIONS OR NEED HELP?

Don’t forget that the MyABDR Support team is always happy to help you with any problems, and can make a time to get back to you if that suits you.

They are available 24 hrs, 7 days a week.

T: 13 000 BLOOD / 13 000 25663
E: support@blood.gov.au.

 

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Date last reviewed: 12 June 2018