No 204 December 2018

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Telling others

How do you tell a new partner about your bleeding disorder?
Or your daughter that she may have a bleeding disorder or carry the gene?
When are you required to tell someone about your bleeding disorder?

Telling others about bleeding disorders is the latest resource in HFA’s The Female Factors project.

The booklet is intended for women, girls and their parents to consider some of the issues about telling others (disclosure). It may also be useful for men with a bleeding disorder when females in their family are affected: sometimes they may be the best informed family member to take the lead in talking to daughters, sisters, and others about what this may mean to them. 

The booklet looks at the pros and cons of telling others and presents a range of situations where disclosure might come up. There are suggestions on how to prepare and personal stories and tips from other Australian women and parents.

There is also a section on disclosure and the law, developed in consultation with legal experts. This is very important information and a generic version relevant to both women and men is available on the HFA website under ABOUT BLEEDING DISORDERS > DISCLOSURE.

You can find the Telling others booklet:

Our thanks to the many people who contributed to the development of Telling Others: Marg Sutherland, health educator, who wrote it; the women, parents, health professionals and legal experts who reviewed it; and the women and parents who very generously shared their experiences and tips in personal stories and quotes.

For more information or to order copies contact HFA:

E: hfaust@haemophilia.org.au
T: 1800 807 173 

 

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Date last reviewed: 5 December 2018