No 206 June 2019
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The 19th Australian Conference on haemophilia, VWD & rare bleeding disorders will be held at the Novotel Manly, Sydney, 10-12 October 2019.
Manly Beach, Sydney
Photo: Destination NSW
Our conferences bring together people with bleeding disorders and their families and carers, as well as health professionals, policy makers and industry. It is a great opportunity to learn, discuss and plan for the future.
Chaired by Dr Liane Khoo, Director, Royal Prince Alfred Hospital in Sydney, NSW, the program committee is developing a multidisciplinary program which will interest everyone.
International expert on pharmacokinetics (PK) and measuring treatment outcomes in haemophilia, Prof Alfonso Iorio from the Department of Health Research Methods at McMaster University in Canada, will be presenting on his work and contributing to the discussion about where treatments are going in Australia.
We will also have a plenary session with Dr Tim Sharp, AKA Dr Happy. Dr Sharp is an expert in human behaviour, in what makes people tick; but his focus is mostly on the promotion of positive psychology principles. His passion lies in helping individuals, teams and organisations to really thrive and flourish.
Program topics will explore the range of what’s new in bleeding disorders. Some examples include:
- Novel treatments
- New ways of providing services such as telehealth
- VWD and rare bleeding disorders
- How to live a healthy life with a bleeding disorder
- Bleeding disorders in females over the lifespan
- Managing care for children
- Getting older
- Youth issues.
And much more!
SHOULD I ATTEND?
The Conference is a great opportunity for the bleeding disorders community and people working in the sector to hear the latest information and discuss current and emerging issues together. It is a niche conference, focused on the specific questions relevant to bleeding disorders, and caters for all delegates. We invite the following people to attend:
- People with haemophilia, von Willebrand disease or other bleeding disorders and their families - parents, siblings, partners – all ages welcome from young adults to seniors!
- Health professionals – doctors, nurses, physiotherapists, psychosocial workers and other health care providers
- Treatment product producers, suppliers and service providers
- Policy makers and government officials
- Haemophilia Foundation volunteers and staff.
EARLYBIRD REGISTRATIONS CLOSE 31 JULY 2019
HFA has allocated funding to assist people living with a bleeding disorder, relatives/partners or carers to attend the Conference for expenses such as flight, registration, accommodation. Part funding applications are encouraged so we increase access and you will generally be expected to contribute towards your costs. Applications will be assessed on their merit – it is in your interests to provide full responses to the questions on the application form. Other funding options may be available from your local haemophilia foundation.
For an application form visit https://tinyurl.com/HFA-conf-funding or call HFA on 1800 807 173.
Applications close 1 July 2019.
MORE INFORMATION AND DETAILS
Conferences and meetings
rare clotting factor deficiencies
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Date last reviewed: 12 June 2019