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World Haemophilia Day

Thank you to all who supported World Haemophilia Day!

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.

World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH), which chose 17 April as the day to bring the community together in honour of WFH founder Frank Schnabel’s birthday.

CONNECTING TO YOUR COMMUNITY

The theme for 2019 was Reach out and connect to your community! 

Reach out to others in the bleeding disorders community. Take opportunities to meet others with similar experiences and share your stories and tips. No matter your age or stage, connection throughout life is vital.

On World Haemophilia Day HFA launched a series of digital personal stories of Australian community members sharing their experiences of reaching out to others in the bleeding disorders community - and the value of meeting others in similar situations who understand what it’s like.  No matter your age or stage, connection throughout life is vital.

 
To view these stories visit http://tinyurl.com/connectBD 

LIGHT IT UP RED!

Together with other landmarks from around the world, Australia had landmarks turn red to celebrate World Haemophilia Day.   

Thank you to the people who attended the landmarks on the night and shared their photos. 

Adelaide Oval

 
Matagarup Bridge, Perth

Pfizer Australia HQ Sydney

Mason at Darwin Convention Centre

Brisbane Town Hall

Andrea and Julia at Melbourne Observation Wheel

Ballarat Town Hall

The Gonella boys at Mackay City Fountain

Topics:

Events & awareness HFA & Foundation news

Keywords:

World Haemophilia Day

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