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No 209 March 2020

In this issue

  • National Haemophilia Journal

PROBE study

  • 11 March 2020

It's not too late to complete the PROBE (Patient Reported Outcomes Burdens and Experiences) questionnaire!   The survey is available at https://tinyurl.com/PROBE-Australia….

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 11 March 2020

2020 WFH WORLD CONGRESS The 2020 WFH World Congress will be held in in Kuala Lumpur, Malaysia from 14-17 June.  …

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  • National Haemophilia Journal

World Haemophilia Day 2020

  • 11 March 2020

GET+INVOLVED 17 April 2020 Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia,…

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  • National Haemophilia Journal

Bombadier Blood Australian Premiere

  • 11 March 2020

Join us for the Australian Premiere of Bombardier Blood! Join us to celebrate World Haemophilia Day on Friday 17 April…

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  • National Haemophilia Journal

Going for it

  • Mark -
  • 11 March 2020

The HFA Go For It Grants program provides awards to inspire and support people affected by a bleeding disorder to…

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  • National Haemophilia Journal

Loneliness

  • Nicoletta Crollini -
  • 11 March 2020

NICOLETTA CROLLINI Nicoletta Crollini is the Haemophilia Social Worker, Royal Prince Alfred Hospital, Sydney According to the Australian Loneliness Report,…

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  • National Haemophilia Journal

Getting Older Project Update

  • Preetha Jayaram -
  • 11 March 2020

PREETHA JAYARAM Preetha Jayaram is the HFA Getting Older Project Officer GETTING OLDER NEEDS ASSESSMENT We have reached the final…

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  • National Haemophilia Journal

Sharing our journey with VWD

  • Robyn Heal and Cara Gannon -
  • 11 March 2020

ROBYN HEAL AND CARA GANNON Robyn Heal and Cara Gannon have VWD Type 1 and are HFV Committee Members Robyn…

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  • National Haemophilia Journal

About von Willebrand disease (VWD)

  • 11 March 2020

People with VWD (also known as von Willebrand disorder) have a problem with a protein in their blood called von…

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  • National Haemophilia Journal

Travel tips

  • Megan Walsh, Penny McCarthy and Amy Finlayson -
  • 11 March 2020

MEGAN WALSH, PENNY MCCARTHY AND AMY FINLAYSON Megan Walsh and Penny McCarthy are Clinical Nurse Consultants, Ronald Sawers Haemophilia Centre,…

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  • National Haemophilia Journal

Normal child development

  • Nicola Hamilton and Alana Randall -
  • 11 March 2020

NICOLA HAMILTON AND ALANA RANDALL Nicola Hamilton and Alana Randall are Paediatric Physiotherapists, The Royal Children’s Hospital, Melbourne Every child…

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  • National Haemophilia Journal

Youth News – Digital Stories

  • 11 March 2020

At the recent national Conference in Sydney, some youth delegates took time out to share their experiences for the HFA…

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  • National Haemophilia Journal

Calendar

  • 11 March 2020

World Haemophilia Day 17 April 2020   WFH World Congress Kuala Lumpur, Malaysia 14-17 June 2020 Bleeding Disorders Awareness Week…

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