No 210 June 2020

PROBE study

19 June 2020

Do you have haemophilia or carrry the gene? Have you completed the PROBE (Patient Reported Outcomes Burdens and Experiences) questionnaire?…

From the President

Gavin Finkelstein -
19 June 2020

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia COVID-19 As we approach the mid-year reporting time for HFA, I…

World Haemophilia Day 2020

19 June 2020

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

Light it up red!

19 June 2020

The following landmarks turned red in support of the day and we thank the authorities that organised this. ACT Telstra…

Let’s talk about getting older

Suzanne O'Callaghan -
22 June 2020

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager When we first asked the nurses at Haemophilia Treatment…

Why a needs assessment?

Suzanne O'Callaghan -
22 June 2020

< Introduction Over the last several decades improvements to treatment and care have created a new phenomenon: for the first…

What did we learn?

Suzanne O'Callaghan -
22 June 2020

< Why a needs assessment? WHAT DID WE LEARN? ‘Ageing’ and ‘getting older’ The first thing that was made clear…

What did we learn from PROBE?

Suzanne O'Callaghan -
22 June 2020

Advocacy, Getting older, Research
ageing, care, needs assessment, quality of life, treatment

< What did we learn? We were able to access age-related data from the PROBE Australia Study in February 2020. …

What will help?

Suzanne O'Callaghan -
22 June 2020

< What did we learn from PROBE? Older people with bleeding disorders often develop strategies to work around their physical…

Getting Older Info Hub

Suzanne O'Callaghan -
22 June 2020

< What will help? Everyone was agreed that there needed to be more information about getting older with a bleeding…

Next steps and thanks

Suzanne O'Callaghan -
22 June 2020

< Getting Older Info Hub Where to next? The report includes a number of recommendations for HFA to discuss and…

Physiotherapy during COVID-19

Alison Morris and Abi Polus -
22 June 2020

Physiotherapy and bleeding disorders during COVID-19 ALISON MORRIS AND ABI POLUS Alison Morris is Senior Musculoskeletal Physiotherapist, Perth Children's Hospital…

Surviving and thriving in times of pandemics

Loretta Riley -
22 June 2020

LORETTA RILEY Loretta Riley is Advanced Social Worker, Queensland Haemophilia Centre, Royal Brisbane and Women's Hospital If I may hazard…

What can we do about it?

Loretta Riley -
22 June 2020

< Surviving and thriving in times of pandemics We don’t need to be passive participants in this environment. We all…

News from South Australia

22 June 2020

Unfortunately the information evening that had been planned has been delayed by COVID- 19, but we hope when things start…

When life changed with inhibitors

22 June 2020

Belinda and Paul are parents of Christopher, aged 7, who has haemophilia and inhibitors. They talked to HFA about the…

Youth News – Pat’s story

22 June 2020

Successful management of haemophilia is key to playing competition sport, but for Pat it wasn’t always that easy. Pat running…

WFH Virtual Summit

23 June 2020

The World Federation of Hemophilia (WFH) is committed to bringing the bleeding disorders community together in the name of Treatment…

Calendar

22 June 2020

WFH Virtual Summit 14-19 June 2020 Bleeding Disorders Awareness Week 11-17 October 2020 Tel: 03 9885 7800 Fax: 03 9885…

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