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No 213 March 2021

It has been an extraordinary year and in this issue we explore resilience and the importance of supporting one another. There are also features on women and girls, VWD and joint health.

In this issue

  • National Haemophilia Journal

Are you getting your e-news

  • 23 March 2021

Have you been receiving your HFA e-news over the last few months?   If not, check your junk folder!  …

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 23 March 2021

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia COVID-19 VACCINE As the vaccine for COVID-19 becomes available around the…

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  • National Haemophilia Journal

20th Australian Conference

  • 23 March 2021

Save the date! The 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders will take place this year from…

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  • National Haemophilia Journal

COVID-19 vaccine FAQs

  • 23 March 2021

With the rollout of the COVID-19 vaccine commencing in Australia, members of the community have asked us about how this…

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  • National Haemophilia Journal

World Haemophilia Day 2021

  • 23 March 2021

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

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  • National Haemophilia Journal

Resilience

  • Nicoletta Crollini -
  • 23 March 2021

Resilience – bouncing back and managing life! NICOLETTA CROLLINI Nicoletta Crollini is Haemophilia Social Worker at the Royal Prince Alfred…

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  • National Haemophilia Journal

WFH Women & Girls Global Summit

  • 5 March 2021

WFH staged their first ever Global summit on women and girls with inherited bleeding disorders in November 2020. The Summit was an…

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  • National Haemophilia Journal

Improving care and quality of life for girls and women

  • Suzanne O'Callaghan -
  • 5 March 2021

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Over the last several years bleeding disorders in women…

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  • National Haemophilia Journal

International VWD clinical guidelines

  • Susie Couper -
  • 5 March 2021

SUSIE COUPER Susie Couper is an Australian community member with VWD and a Haemophilia Foundation WA committee member. Susie has…

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  • National Haemophilia Journal

Measuring joint health in haemophilia

  • Sumit Parikh -
  • 23 March 2021

SUMIT PARIKH Dr Sumit Parikh is the AHCDO ABDR Senior Research Fellow  How can haemophilia treatment outcomes be measured? The…

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  • National Haemophilia Journal

South Australia update

  • 23 March 2021

Save the date!   We have two activities coming up for the bleeding disorders community in South Australia.     It…

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  • National Haemophilia Journal

What’s new on the Getting Older Info Hub?

  • 23 March 2021

New content is added to the HFA Getting Older Info Hub regularly.   Check it out at www.haemophilia.org.au/getting-older   WHAT’S…

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  • National Haemophilia Journal

Rare Disease Day 2021

  • 23 March 2021

Rare Disease Day was celebrated globally on 28 February 2021 to raise awareness about the experiences of people with rare…

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  • National Haemophilia Journal

Youth News – Rare and embracing independence

  • Belinda -
  • 23 March 2021

Belinda spoke with HFA about her journey to tackle life independently with factor X (10) deficiency.   It’s the goal…

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  • National Haemophilia Journal

Everyone has a story to tell

  • 23 March 2021

And we would love to hear it!   Would you like to share your story for World Haemophilia Day?  …

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  • National Haemophilia Journal

Calendar

  • 23 March 2021

World Haemophilia Day 17 April 2021   20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders (virtual meeting) 8-9…

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