No 215 September 2021

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2021 Conference

The virtual 20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders, 8-9 October 2021 is shaping up well, with a diverse program, great speakers, and an opportunity for you to catch up with friends, old and new!

20th Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders

THEME AND SPEAKERS

 
Our theme is Embracing a Changing World and we have confirmed exciting speakers.  You can find more information in the Program below.

With Dr Ritam Prasad, Haematology Treatment Centre Director, Calvary Mater Newcastle, NSW and Suzanne O’Callaghan, HFA Policy Research and Education Manager as co-chairs, the program committee has been developing a multidisciplinary program which will interest everyone.

 
David Stephensen, Haemophilia Physiotherapist from the UK, has more than 20 years’ clinical and research experience working with children and adults with haemophilia. He will talk about his research on exercise for children with haemophilia and about the role of physiotherapy in the age of new treatments.
 
Professor David Lillicrap from the Department of Pathology and Molecular Medicine at Queen’s University, Kingston, Canada is an expert on blood clotting and innovations in the treatment of bleeding disorders and novel therapies and will lead us through what the future holds. 
 
Professor Mike Makris is Honorary Consultant Haematologist at Sheffield Teaching Hospitals, NHS Trust, UK and will challenge our thinking about where treatment and care is heading over the next few years. 

Paul McLaughlin from the UK is the current chairman of the Haemophilia Chartered Physiotherapists Association (HCPA), a UK group of specialist physiotherapists working in haemophilia. He is going to speak on pain in haemophilia and managing chronic pain.

Dr Christian Barton works in both research and private practice treating sports and musculoskeletal patients in Melbourne. He will talk about research on exercise and the GLA:D®, Good Life with osteoarthritis Program.

Program sessions on advances in treatment and care, managing bleeds, diagnosing and treating VWD, specific issues for women and girls and young people, understanding and managing pain, sport and exercise, getting older, managing hep C and HIV, mental health, managing change and optimising peer support will be among the sessions running over the two days of our virtual conference.
 

CONNECTING WITH THE COMMUNITY

 
Connect with one another and share your experiences! This has always been a key part of our national conferences. There will still be plenty of opportunities for you to connect, share and have fun - we will be doing things very differently at our first ever virtual national conference!
 
Hosted Social Activities
Look out for the hosted social activities over the two days and join us for the social function on the Friday evening.
 
Remembrance Service
The Remembrance Service is an important part of our conference and all delegates will be able to reflect on the past and how it has affected each of us.
 

REGISTRATION

 
Our aim is to make the Conference accessible and affordable for everyone. If the travel and cost has stopped you in the past, you can attend this conference from the convenience of your home or office.
 
Registration includes:
 
  • Access to all plenary and concurrent program sessions
  • Access to all extra activities
  • Access to Gold Sponsors’ private rooms for health care professionals or for community delegates.
  • Hosted opportunities to connect with other delegates
  • Remembrance Service
  • Social function on the Friday evening
  • A conference satchel with abstract book and information can be either posted to you or sent digitally.

Costs
 
Category 1 - $50 per user access
Person with a bleeding disorder, family and carers
Haemophilia Foundation staff
 
Category 2 - $75 per user access
Health professionals, government officials, pharmaceutical company representatives and
other regular delegates
 
Register online at -
www.haemophilia.org.au/conference21registration
Online registration only. If you require any assistance let us know.  Your local foundation maybe offering funding or subsidies. Please contact them directly for further information.
 

FAQs

 
What do you need to participate successfully?
  • Computer with sound card, tablet or smartphone
  • WIFI or data, with enough data for a 2-day stream

 

Do I need to sit in front of a screen for the entire 2 days?
No, there will be breaks, live sessions and pre-recorded sessions. To get the most out of conference, we recommend you attend the live sessions that are of most interest to you so you can ask questions and participate in conversations.
 
Will sessions be available for playback on demand afterwards?
All live sessions will also be recorded and you will be able to access the recordings straight after the session.
 
With your registration you will also be able to access all the recordings on demand after the conference.
 
Will I be able to meet others in the community during the conference? I enjoyed the face- to-face part of past conferences.
Yes, you will have the opportunity to meet others virtually in scheduled social activities. We will have allocated times for this.

CONFERENCE PROGRAM 2021 


Friday 8 October 2021

0855 Official Conference Welcome & Acknowledgement of Country
  Gavin Finkelstein, President HFA and Dr Ritam Prasad, Conference Co-chair
0900-1015 Plenary 1 – The changing world of bleeding disorders  
1015-1045 MORNING TEA
1045-1215 Concurrent 1 - Managing bleeds under current new treatments
 
Concurrent 2 – Von Willebrand disease
 
1215-1325 LUNCH
1325-1455 Concurrent 3 – Sex, sexuality and intimacy
 
Concurrent 4 - Women and girls
 
 
1455-1535 AFTERNOON TEA
1535-1700 Plenary 2 – Dealing with change
 
1800-1830 Remembrance Service
 
1900 - 2000 Battle of the Trivia - Evening social activity free to all delegates

Saturday 9 October 2021
 
0900-1015 Plenary 3 - Pain
1015-1045 MORNING TEA
1045-1215

Concurrent 5 - Making the most of your health virtually

Concurrent 6 – Getting stronger safely
1215-1325 LUNCH
1325-1455

Concurrent 7 - Youth – challenges, taboos

Concurrent 8 - Getting older
 
1455-1535 AFTERNOON TEA
1535-1700 Plenary 4 – Where to from here?
 

SOCIAL ACTIVITIES
During break times join our community room to meet and chat with others or attend our sponsors’ virtual exhibition rooms. We have a fun activity being planned for Friday night, which is free with your registration.   

NO MORE SESSION CLASHES!
Most sessions will be recorded (depending on permission from speaker) and this will be clear on the online program. With your registration you will be able to access recorded sessions during and after the conferenceand then watch them on demand when you wish..  
 

THANK YOU TO OUR SPONSORS 


All delegates will be able to meet our Gold Sponsors in their specially dedicated private rooms for health care professionals or community delegates.

2021 Conference sponsor logos
 

FOR MORE INFORMATION 


Visit the conference website

Or contact HFA at hfaust@haemophilia.org.au 


 
Topics:

Conferences and meetings

Keywords:

conference haemophilia inherited platelet function disorders rare clotting factor deficiencies VWD

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Date last reviewed: 16 September 2021