No 217 March 2022

Where to next? is the question we explore in this issue of National Haemophilia. How do we raise awareness about bleeding disorders, how do we manage bleeds with the new haemophilia treatments, how do we journey forward with HIV? And more!

In this issue

The WFH 2022 World Congress will take place as scheduled on 8-11 May 2022, face-to-face in Montreal, Canada and virtually….

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia   RAISING AWARENESS   On 17 April we join the global community in celebrating…

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

ERIN KRAKE AND BERYL ZEISSINK Erin Krake is Clinical Nurse Consultant, Henry Ekert Haemophilia Treatment Centre, Royal Children's Hospital, Melbourne…

Have you caught up on the 2021 Conference on demand?   With over 30 Australian and international speakers and a…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager With new haemophilia treatments for adults and children available…

In 2021 it was 40 years since the first official report of HIV.   Around the globe it was an…

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager In August 2021 HFA undertook an evaluation survey of…

 Have you had the chance to explore the new features of National Haemophilia online?   We bring you relevant and…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What does our community think of the HFA Getting…

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

My name’s Adam. I am 17 years old and I have severe haemophilia A. Why do I raise awareness? To…

This year we're raising awareness for bleeding disorders throughout the entire month of October.   We'll share more information about…

World Haemophilia Day 17 April 2022   WFH 2022 World Congress Montreal, Canada and virtual 8-11 May 2022   Bleeding…

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