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*Alex is not his real name ‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after decades of living with the virus? Alex spoke with...
Willem spoke to HFA about working, exercising and being out and about in these days with new treatments. My name’s Willem. I am 20 years old and I have severe haemophilia A. Tell us about...
NICOLA HAMILTON Nicola Hamilton is the haemophilia physiotherapist at the Royal Children’s Hospital, Melbourne Plenary 3 – Pain Chair ~ Dr Liane Khoo Pain in haemophilia ~ Paul McLaughlin, UK I enjoyed this...
Career, work and sport Resilience is an important factor in adapting to the many changes that occur during our lives. For young people with bleeding disorders the steps to adulthood involve new responsibilities in many...
SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager Over the last several years bleeding disorders in women and girls, treatment and care and improving quality of life have taken a front seat...
Emerging from COVID – defining a new normal Moderator: Declan Noone, President, European Haemophilia Consortium The impact of COVID-19 on the global bleeding disorders community was a key session in the WFH Virtual Summit. Jaime...
SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What does quality of life mean to you? Living with (an inherited) bleeding disorder in a changing world Moderator: Deon York, Board Member, World...
LORETTA RILEY Loretta Riley is Advanced Social Worker, Queensland Haemophilia Centre, Royal Brisbane and Women's Hospital If I may hazard a guess, 2020 isn’t turning out like you imagined. No-one would have foreseen that we...
< Surviving and thriving in times of pandemics We don’t need to be passive participants in this environment. We all have skills and strategies that we can turn to which will assist us during this...
NICOLETTA CROLLINI Nicoletta Crollini is the Haemophilia Social Worker, Royal Prince Alfred Hospital, Sydney According to the Australian Loneliness Report, loneliness is experienced by 1 in 4 Australians and people under the age of 65...
HIGHLIGHTS JANE PORTNOY Jane Portnoy, Social Worker – Haemophilia The Alfred hospital, Melbourne Youth – what’s the risk? Chair: Dr Moana Harlen Risk taking was the topic: the audience were asked to...
Managing my VWD – Shauna’s story SHAUNA Shauna is an Australian community member with von Willebrand disease This is a transcript of Shauna’s presentation at the 2019 Conference Shauna challenging herself with a trek...
Andrew and Scott are Australian community members with severe haemophilia A. Australian brothers Andrew, 30 and Scott, 37, took on the El Capitan climb at Yosemite National Park in California in September 2019. Andrew is...
EMMA PROWSE Dr Emma Prowse is Clinical Psychologist at the Children’s Cancer and Haematology Service, John Hunter Children’s Hospital, Newcastle, NSW THE CHALLENGES According to the World Health Organisation, ‘without mental health there can...
JOANNA MCCOSKER Joanna McCosker is the Nurse Practitioner at the Queensland Haemophilia Centre, Queensland Children’s Hospital, Brisbane In haemophilia care over the last two decades there has been a greater recognition and awareness of the...
Andrew climbing at Wye Creek in New Zealand Photo: Andrew and Scott Godwin Australian brothers Andrew, 30 and Scott, 37, are taking on the El Capitan climb at Yosemite National Park in California in September...
DIANA HARTE Diana Harte is Senior Clinical Psychologist at the Ronald Sawers Haemophilia Centre, Alfred Health, Melbourne Life is challenging and can be more so when living with a bleeding disorder. Research tells us that...
Starting work a new job is a stressful time for anyone, but bleeding disorders can carry with them a few extra challenges. We spoke with one of our youth leaders, Robbie, who has severe haemophilia....
This article was originally published in Poslink, the newsletter of Living Positive Victoria (www.livingpositivevictoria.org.au), issue 83, Winter 2018, and is reprinted with permission. In this article Trish Thompson highlights the value of social connection. Both...
Australian nurses at Congress Photo: Robyn Shoemark The WFH World Congress in Glasgow was attended by 11 specialist Haemophilia Nurses from Australia. The opportunity for nurses to attend the Congress came from a number of...
MOANA HARLEN Dr Moana Harlen is the Senior Psychologist – Haemophilia at the Queensland Haemophilia Centre, Lady Cilento Children’s Hospital, Brisbane Moana Harlen and Linda Dockrill from NZ PSYCHOSOCIAL PROFESSIONAL DEVELOPMENT DAY: KEEPING THE ENERGY...
HAYLEY COULSON Hayley Coulson is Physiotherapist at the Queensland Paediatric Haemophilia Treatment Centre, Lady Cilento Children’s Hospital, Brisbane Hayley Coulson and Moana Harlen at the Congress Photo: Hayley Coulson The World Federation of Haemophilia Congress...
ROBYN SHOEMARK AND HELEN STAROSTA Robyn Shoemark is Clinical Nurse Consultant, The Children’s Hospital at Westmead Helen Starosta is Clinical Nurse Consultant, Royal Hobart Hospital Home treatment and prophylaxis have become a way of life...
When your child’s joint and muscle pain is not a bleed AUBURN MCINTYRE Auburn McIntyre is the Haemophilia Physiotherapist at the Women’s & Children’s Hospital, Adelaide In this article we will be looking at particular...
Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.
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