The December 2022 National Haemophilia
is hot off the press and ready to read on our website. Catch up on the latest information and personal stories from our community.
READ NATIONAL HAEMOPHILIA
- Bleeding Disorders Awareness Month - it's a wrap!
- New haemophilia therapies
- Tips for parents on starting primary or high school
- Personal Stories on haemophila and VWD
- AHCDO Update
- Youth News: Willem's story
It is exciting to see more new therapies for bleeding disorders coming to the global market. Some of the treatments we have been hearing about over the years are becoming a reality.
You can find out more about some of the new haemophilia therapies
in this issue of National Haemophilia
or watch the webinar on our website. We would like to thank Dr Liane Khoo, Dr Sally Campbell and haemophilia nurse Stephen Matthews for their webinar explaining how the new therapies work and what they mean for a person with haemophilia.
The new year is nearly here and some of you will be preparing to start your child at a new primary or secondary school. There is always a lot to think about, and that can include how to manage your child and their bleeding disorder and what to tell the teachers. So much has changed now and it will be important to educate the school.
Our Haemophilia Treatment Centre staff help with this by supporting families and providing information for schools. Have a look at Janine Furmedge and Jaime Chase’s article
in this issue for some helpful advice and tips.
We are very pleased that the 21st Australian Conference on Haemophilia, VWD and Rare Bleeding Disorders
will be held 24-26 August 2023 in Melbourne. This time the conference will be an in-person event. We are looking forward to coming together as a community to hear the very latest information and discuss where we are going with treatments, comprehensive care and living well generally. Save the date in your calendar!
Bleeding Disorders Awareness Month
For the first time, Bleeding Disorders Awareness ran over a month – and what a great month it was. Be sure to read the article and take a look at all the photos
of our amazing community members helping to raise awareness. We'd also like to offer our thanks to all of the community members and experts who shared their knowledge and experience in a series of webinars held throughout the month. You can find links to each of these on our website
A big part of raising awareness for bleeding disorders comes from sharing personal stories from our community. In this issue of National Haemophilia
hear from Fiona as she talks about VWD through the generations
, and Naomi whose father and son share a special bond
. Willem joins us for Youth News
, speaking about working, exercising and being out and about these days with a new treatment.