Do you have VWD? Or do you have a personal or professional interest in VWD?
The World Federation of Hemophilia (WFH) is seeking comment from the VWD community worldwide on the draft international VWD clinical guidelines and recommendations
This is being done through an online survey. To view the draft guidelines and complete the survey please click on the link below:
In the survey you can choose to respond to specific questions/recommendations. You can make comments on all the recommendations or only on some of them. Responses will be summarized and reported together.
The public comment period is open from today to 30 April 2020.
This is an important opportunity to share your thoughts and have your voice heard regarding the International VWD Guidelines, which will shape VWD management and care in the future.
Please encourage people you know to provide comments: people with VWD or parents/partners/family, and health care professionals who care for people with VWD are all invited to participate.
The WFH is collaborating with the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), and the National Hemophilia Foundation (NHF) to create clinical guidelines for the diagnosis and management of VWD. The guidelines are intended to make recommendations that will inform both healthcare providers and patients in their decision-making especially where there is uncertainty or variation in clinical practice. In the final phase of development, a public comment period opened today
providing the global community the opportunity to comment on the recommendations of both the VWD Diagnosis and the VWD Management Panels.
The WFH thanks everyone in advance for providing comments and sharing this opportunity with your local communities as well as networks.
If you have any questions or concerns, please contact the WFH at firstname.lastname@example.org