News

Covid-19 restrictions Victoria

Posted: Wednesday, 5 August 2020
Due to extended Covid-19 restrictions in Victoria, HFA staff will continue to work from home and the office is completely closed. Calls to 0398857800 and 1800 807 173 numbers will continue to be redirected and answered and you can contact HFA staff via hfaust@haemophilia.org.au or visit Meet the staff for our direct contacts.

Our mail is being safely held at the Post Office.  Please note that donations made by post will be processed after the lockdown period when we can return to our office. You can continue to make donations online at www.haemophilia.org.au/donate

We thank you for your support and know that HFA will continue to support the bleeding disorders community and operate as closely to business as usual.

World Hepatitis Day

Posted: Tuesday, 28 July 2020
Today is World Hepatitis Day.

Getting Older community report

Posted: Thursday, 9 July 2020
The Getting Older community report is now available on the HFA website

HFA office during COVID-19

Posted: Thursday, 9 July 2020
HFA staff are continuing to work remotely from home during the current COVID-19 crisis.

NBA EHL treatment tender announced

Posted: Tuesday, 30 June 2020
The National Blood Authority tender for EHL treatments was announced today

HFA Getting Older report

Posted: Thursday, 18 June 2020
The HFA Getting Older with a bleeding disorder report is now available!

Getting Older Info Hub

Posted: Thursday, 18 June 2020
Visit the new HFA Getting Older Info Hub for the information you need to navigate getting older with a bleeding disorder

WFH Virtual Summit

Posted: Friday, 12 June 2020
The World Federation of Hemophilia (WFH) Virtual Summit is commencing on Sunday 14 June 2020.

VWD guidelines feedback extended

Posted: Wednesday, 29 April 2020
The public comment period for the VWD Guidelines has been extended to 15 May 2020.

Message from HFA Exec Dir

Posted: Wednesday, 29 April 2020
A message from Sharon Caris, HFA Executive Director, about connecting during the COVID-19 crisis

Happy World Haemophilia Day

Posted: Friday, 17 April 2020
Happy World Haemophilia Day and on this special 30th anniversary.
 

VWD clinical guidelines feedback

Posted: Wednesday, 8 April 2020
The WFH is seeking comment from the VWD community worldwide on the draft international VWD guidelines and recommendations.

WFH Medical News

Posted: Wednesday, 8 April 2020
The World Federation of Hemophilia has published a Medical News release on specific risks to people with bleeding disorders if they acquire COVID-19.

COVID-19 update

Posted: Friday, 3 April 2020
An update from HFA on COVID-19

Coronavirus update

Posted: Wednesday, 18 March 2020
An update on the latest information about coronavirus (COVID-19)

HFA Office

Posted: Monday, 16 March 2020
HFA staff are now working remotely during the current coronavirus crisis. 
 

Rare Diseases Day

Posted: Saturday, 29 February 2020
Rare Disease Day will be celebrated on 29 February 2020. Its aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Coronavirus

Posted: Thursday, 27 February 2020
HFA has been asked about the safety of clotting factor treatments made from human blood plasma in the context of Coronavirus (COVID-19).
 
Lifeblood (formerly the Australian Red Cross Blood Service) has confirmed that donor screening procedures in Australia to prevent individuals who show disease symptoms typical of a coronavirus infection, including COVID-19, are routinely in place, and will continue to be reviewed. There is no current evidence suggesting coronavirus is transmissible by blood transfusion and other similar respiratory viruses are not known to be transmitted by blood. Virus detection in the blood has only been detected in a relatively small proportion of unwell patients who would not be eligible to donate blood. Further, dry heat treatment, solvent detergent and other steps used in the fractionation process inactivate and remove viruses.
 
In relation to ongoing supply of treatment products in Australia, the National Blood Authority has contracts with suppliers in place to ensure adequate supplies of local and imported clotting factors, including national reserves and advises there is no reason to expect any threats to supply at this time.
 
HFA will continue to monitor the situation and provide updates.
 
For up to date information about the Coronavirus situation see
https://www.health.gov.au/health-topics/novel-coronavirus-2019-ncov

Australian bushfires

Posted: Friday, 10 January 2020
Please let HFA know if we can assist bleeding disorder community members affected by the bushfires.

PROBE study

Posted: Tuesday, 24 December 2019
It's not too late to complete the PROBE study!

Season's Greetings!

Posted: Thursday, 19 December 2019
The HFA Council and Staff wish you a happy and safe festive season.

Getting Older community survey

Posted: Tuesday, 3 December 2019
HFA invites you to take part in the Getting Older community survey

World AIDS Day 2019

Posted: Sunday, 1 December 2019
Today is World AIDS Day.

New gene therapy resource

Posted: Wednesday, 6 November 2019
HFA has released a new resource, Gene therapy for haemophilia

Bleeding Disorders Awareness Week

Posted: Sunday, 13 October 2019
Bleeding Disorders Awareness Week starts today!

HFA phones are down

Posted: Thursday, 10 October 2019
We apologise but HFA phones are currently down, pls call 0410 419 914 or send a email to the person you are trying to contact or hfaust@haemophilia.org.au and we will call you back 

Female Factors survey prize draw

Posted: Wednesday, 7 August 2019
Congratulations to the winner of the Female Factors survey prize draw!

World Hepatitis Day

Posted: Sunday, 28 July 2019

Today is World Hepatitis Day.

Female Factors evaluation survey

Posted: Friday, 5 July 2019

Help us with your feedback on our new The Female Factors booklets!

MSAC application for Hemlibra

Posted: Tuesday, 21 May 2019

The Medical Services Advisory Committee (MSAC) has invited stakeholder input in relation to government funding for emicizumab (Hemlibra®). 

PROBE study

Posted: Thursday, 16 May 2019

The real-world PROBE study is now available!

World Haemophilia Day

Posted: Wednesday, 17 April 2019

Today is World Haemophilia Day. How will you reach out and connect with your community?

New hepatitis C treatment

Posted: Monday, 15 April 2019

Another new treatment for hepatitis C, Vosevi® (sofosbuvir with velpatasvir and voxilaprevir), has been made available on the PBS from 1 April 2019.

HFA Research Fund

Posted: Tuesday, 5 March 2019

The 2019-2020 funding round for the HFA Research Fund is now open.

Team.Factor in 2019

Posted: Thursday, 28 February 2019

Team.Factor took on the 2019 Challenge Tour in South Australia once again on Saturday 19 January 2019.   

Rare Disease Day

Posted: Tuesday, 26 February 2019

Rare Disease Day will be celebrated on 28 February 2019.

New resource - Telling others

Posted: Wednesday, 9 January 2019

HFA has released a new resource in The Female Factors project - Telling others about bleeding disorders: information for women, girls and their parents

Team.Factor in Challenge Tour

Posted: Wednesday, 9 January 2019

A group of cyclists led by Andrew Atkins will ride as Team.Factor in the 2019 Challenge Tour in South Australia on Saturday 19 January 2019.  

Gene therapy resource survey

Posted: Friday, 21 December 2018

Tell us your questions about gene therapy to help us develop a new education resource.

EHL Clotting Factor Products News

Posted: Wednesday, 19 December 2018

The National Blood Authority (NBA) announced today that they will include Extended Half-Life (EHL) factor VIII and factor IX products in the next national tender for clotting factors and related products, currently planned for 2019. 

Go For It grants announced!

Posted: Thursday, 6 December 2018

The recipients of HFA Go For It grants for 2018 have been announced.

World AIDS Day

Posted: Saturday, 1 December 2018

World AIDS Day is marked globally on 1 December. In 2018 we look to the national theme of Everyone counts and remind ourselves of the impact of HIV on our community and worldwide.

Youth Canoe Journey postponed

Posted: Thursday, 8 November 2018

The HFA Youth Canoe Journey has been postponed.

New young women's resource

Posted: Wednesday, 10 October 2018

We are very pleased to announce the release of Female Factors, our new resource about bleeding disorders for young women.

Today is the start of Bleeding Disorders Awareness Week

Posted: Sunday, 7 October 2018

It’s the start of Bleeding Disorders Awareness Week until Sat 13 October.  This week is an opportunity for Haemophilia Foundations and other organisations, as well as individuals and families to take part in a campaign and activities to raise awareness about haemophilia, von Willebrand disorder and related inherited bleeding disorders throughout Australia.

Go to BDAW HFA for more information and downloads

VWD - why the change?

Posted: Tuesday, 18 September 2018

Why is HFA changing VWD from von Willebrand disorder to von Willebrand disease?

On the Move with Haemophilia

Posted: Tuesday, 18 September 2018

On the Move with Haemophilia is a new online educational program about exercise and sport for young people with haemophilia

Go for it Grants closing date extended

Posted: Friday, 17 August 2018

The closing date for Go for it Grants applications has been extended to Friday 21 September 2018.

Youth Canoe Journey applications extended

Posted: Monday, 13 August 2018

Applications for the HFA Youth Canoe Journey have now been extended until Friday 31 August 2018.

New hep C treatment

Posted: Thursday, 2 August 2018

A new hepatitis C treatment, Maviret®, was added to the Pharmaceutical Benefits Scheme on 1 August 2018.

Female Factors Survey prize draw

Posted: Wednesday, 18 April 2018

Thank you to everyone who gave feedback in our The Female Factors survey. And congratulations to our prize draw winner!

Today is World Haemophilia Day

Posted: Tuesday, 17 April 2018

On 17 April World Haemophilia Day is recognised globally to increase awareness of haemophilia and other inherited bleeding disorders. The theme for World Haemophilia Day 2018 is ‘Sharing Knowledge Makes Us Stronger’. 

The Female Factors booklets survey

Posted: Thursday, 15 March 2018

Help us to improve our The Female Factors booklets with your feedback!

Rare Disease Day 2018

Posted: Wednesday, 28 February 2018

Today is Rare Disease Day. Join us in making the voice of people with rare diseases heard!

Team.Factor rides again

Posted: Friday, 12 January 2018

For the sixth year a group of cyclists led by Dr Simon McRae and Andrew Atkins will ride as Team.Factor to take on the BUPA Challenge Tour in South Australia on Friday 19 January 2018. 

Season's Greetings

Posted: Thursday, 21 December 2017

The HFA Council and staff wish you a happy and safe festive season.

Gene therapy breakthrough for haemophilia

Posted: Thursday, 7 December 2017

Today researchers at Royal Prince Alfred Hospital in Sydney and their international collaborators announced a breakthrough in gene therapy for haemophilia B.

Today is World AIDS Day

Posted: Friday, 1 December 2017

Today is World AIDS Day.

Vale Sir Ninian Stephen

Posted: Monday, 30 October 2017

The Rt Hon Sir Ninian Stephen, HFA’s Patron for many years, died on the weekend, aged 94.

Launch of newly diagnosed folder

Posted: Friday, 27 October 2017

We are very pleased to announce that the new HFA folder Haemophilia - a guide for parents of a newly diagnosed child is now available.

MyABDR remember me function

Posted: Friday, 18 August 2017

From Tuesday 22 August 2017 if you want to use the REMEMBER ME function on the MyABDR app, you will need to set a 4-digit pin.

New hep C treatment for PBS

Posted: Friday, 4 August 2017

From 1 August 2017 a new hepatitis C treatment has been made available on the PBS to treat people who have any strain of hepatitis C virus (HCV). 

Today is World Hepatitis Day

Posted: Friday, 28 July 2017

Today is World Hepatitis Day.

This year we celebrate World Hepatitis Day with the stories of people with haemophilia who have been cured of their hep C.

Private health insurance survey

Posted: Friday, 14 July 2017

Help HFA to comment to the Australian Government about the impact of private health insurance on the bleeding disorders community - complete the HFA community survey by 24 July 2017

MyABDR user survey

Posted: Thursday, 22 June 2017

Complete the MyABDR user survey by Friday 30 June 2017. Tell us about your experience of MyABDR and changes you would like to see in the future

New HFA women's booklet

Posted: Monday, 15 May 2017

HFA is pleased to announce the release of the new The Female Factors booklet, Haemophilia - Finding out you carry the gene.

World Haemophilia Day

Posted: Monday, 17 April 2017

TODAY IS WORLD HAEMOPHILIA DAY!

Hear Their Voices

Posted: Tuesday, 11 April 2017

In 2017 the theme for World Haemophilia Day is Hear Their Voices – showing support for the millions of women and girls affected by bleeding disorders.

It is an opportunity to bring attention to the women and girls in our community who live with a bleeding disorder or have someone in their lives who does.

Red Tie Challenge

Posted: Saturday, 1 April 2017

Take on the challenge and wear a red tie/scarf to raise awareness for people with bleeding disorders #RedTieChallengeAUS send us your pic!

Celebrate Rare Diseases Day!

Posted: Tuesday, 28 February 2017

On Rare Disease Day research brings hope.

Go For It Grants extended

Posted: Tuesday, 21 February 2017

The closing date for the HFA Go For It Grants has been extended to Friday 24 February!

Team Factor rides again in 2017!

Posted: Friday, 3 February 2017

For the fifth year in a row Team.Factor rode in the gruelling 2017 BUPA Challenge Tour to fundraise for their favourite cause - Haemophilia Foundation Australia.

Team Factor rides again!

Posted: Wednesday, 11 January 2017

Support Team Factor in their ride in the 2017 BUPA Challenge Tour!

HFA Annual Report 15/16

Posted: Tuesday, 6 December 2016

The Haemophilia Foundation Australia Annual Report 2015/2016 can be downloaded at https://www.haemophilia.org.au/HFA/media/Documents/Annual%20Report/HFA-Annual-Report-1516.pdf.  The report outlines the scope of our work and highlights the achievements of the Foundation during the year.
 

World AIDS Day 2016

Posted: Thursday, 1 December 2016

Today is World AIDS Day.

Haemophilia Awareness Week

Posted: Monday, 10 October 2016

Join us in celebrating Haemophilia Awareness Week - 9 to 15 October 2016

New haemophilia clinical management guidelines

Posted: Tuesday, 13 September 2016

The Guidelines for the management of haemophilia in Australia have now been released.

These new Guidelines are a first for Australia, with multidisciplinary advice on care and management of people with haemophilia that is relevant to an Australian setting.

World Hepatitis Day 2016

Posted: Thursday, 28 July 2016

Today is World Hepatitis Day.

In 2016 revolutionary new hep C treatments are now available. 

What is so exciting about the new hep C treatments for people with bleeding disorders? 

Watch our video to find out more from the experts! 

The Female Factors new booklet

Posted: Friday, 24 June 2016

Get your copy of The Female Factors snapshot now! - HFA's introductory booklet on bleeding disorders in females

World Haemophilia Day 2016

Posted: Friday, 15 April 2016

Sunday April 17 is World Haemophilia Day. Connect to the international community to help achieve Treatment for All!

Access to New Hep C Drugs

Posted: Tuesday, 1 March 2016

From 1 March 2016 new breakthrough hepatitis C treatments will be available on the PBS

Rare Disease Day

Posted: Monday, 29 February 2016

It’s a day when people living with a rare disease, or those affected by it, community organisations, carers and health professionals, researchers, government and industry come together in solidarity to raise awareness of rare diseases.

 

Team Factor Rides Again!

Posted: Monday, 4 January 2016

For the fourth year a group of cyclists led by Dr Simon McRae and Andrew Atkins will ride as Team.Factor to take on the BUPA Challenge Tour in South Australia on Friday 22 January 2016. The 2016 Bupa Challenge Tour will be from Norwood to Victor Harbor, just over 140kms. 

New Hep C Drugs to go on PBS

Posted: Monday, 21 December 2015

A very welcome Christmas message for our community: Australian Minister for Health Sussan Ley has announced that new breakthrough hepatitis C treatments will be available on the PBS from 1 March 2016.

World AIDS Day

Posted: Tuesday, 1 December 2015

World AIDS Dayis marked internationally on 1 December.
This is a time to raise awareness in the wider community about the issues surrounding HIV and AIDS...

Time to Take Action on New Hep C Cures

Posted: Wednesday, 30 September 2015

With time running out for many people with hepatitis C, Haemophilia Foundation Australia joined Hepatitis Australia and 25 other health organisations today in an open letter to Australian Health Minister...

PBAC Approves New Hep C Treatment

Posted: Friday, 21 August 2015

HFA welcomes the recommendation of the Pharmaceutical Benefits Advisory Committee (PBAC)​ to add Viekira PAK® to the Pharmaceutical Benefits Scheme (PBS) for the treatment of chronic hepatitis C genotype 1...

Survey Prize Draw Winners

Posted: Tuesday, 11 August 2015

Thanks to everyone who completed the HFA National Member Survey... 

HFA National Community Survey

Posted: Tuesday, 28 July 2015

Make sure you answer the HFA National Community Survey to be in the draw to win great prizes!

World Hepatitis Day

Posted: Friday, 10 July 2015

Are you ready to take action on World Hepatitis Day?

Hep C Inquiry report released

Posted: Friday, 26 June 2015

The Australian Government has released The Silent Disease - Hep C Inquiry report

HFA National Community Survey

Posted: Tuesday, 16 June 2015

Complete the survey and have your say on HFA's programs and services

PBAC decision on new hep C drugs

Posted: Friday, 24 April 2015

PBAC has recommended new hepatitis C treatments for listing on the PBS 

World Haemophilia Day

Posted: Thursday, 16 April 2015

April 17 is World Haemophilia Day and landmarks are turning red worldwide

Hep C update

Posted: Monday, 23 March 2015

Thank you for your contributions to the HFA hep C survey

Hep C Inquiry - make your voice heard

Posted: Tuesday, 10 February 2015

It's not too late to tell your story for the government inquiry

ABDR MyABDR Privacy Consent

Posted: Friday, 23 January 2015

If you are a Haemophilia Centre patient you will need to complete  new ABDR MyABDR privacy consent form 

Hep C – help us with the government inquiry

Posted: Monday, 15 December 2014

Complete the HFA survey and tell your story for the Hep C inquiry

New government inquiry into hep C

Posted: Friday, 5 December 2014

A new Australian Government inquiry into hepatitis C was announced this week

Hep C news

Posted: Thursday, 11 September 2014

An update on the availability of new hep C treatments in Australia

AIDS 2014 in Melbourne

Posted: Monday, 14 July 2014

The 2014 International AIDS Conference will take place in Melbourne 20-25 July 2014.

National Clotting Factor Treatment Product Tender

Posted: Friday, 30 May 2014

The National Blood Authority (NBA) has finalised the new contracts for the ongoing supply of clotting factor treatment products in Australia.

New hep C treatments - your views

Posted: Thursday, 29 May 2014

Please help HFA to tell the Australian Government about your views on new hepatitis C treatments

Hep C – out of pocket costs

Posted: Thursday, 29 May 2014

Are you affected by hep C? Help us to tell government about your health care costs

MyABDR – a world first!

Posted: Tuesday, 25 March 2014

The official launch of MyABDR recognises a world first app and web site for people with bleeding disorders

MyABDR now live!

Posted: Tuesday, 11 March 2014

MyABDR is now available. Find out how to register and get started!

Haemophilia treatment survey

Posted: Saturday, 8 March 2014

Haemophilia treatments - tell us what you think.

MyABDR Survey

Posted: Tuesday, 23 July 2013

Complete the MyABDR survey and enter the draws for great prizes!

MyABDR project

Posted: Friday, 12 July 2013

The MyABDR project to develop an app for people to record treatment and bleeds has commenced!

Recombinant factor VIII tenders

Posted: Tuesday, 15 November 2011

What do the blood product tender processes mean for people currently treated with recombinant factor VIII for haemophilia A? Important information is now available .

Vale Peter Mathews

Posted: Monday, 12 September 2011

The HFA Council and Board acknowledges the passing of Peter Mathews on 5 September 2011.

In His Own Words

Posted: Thursday, 21 April 2011

The Fogarty family talk about their haemophilia experience on Australian TV news for World Haemophilia Day. 

Melbourne for 2014 World Congress

Posted: Friday, 16 July 2010

Members of the World Federation of Hemophilia General Assembly today voted that Melbourne will be the host city for the 2014 World Hemophilia Congress.

Good news about hep C treatment for people with haemophilia

Posted: Friday, 15 May 2009

Results presented at an international conference have given hope of a cure for those people in Australia with bleeding disorders who also live with hepatitis C. 

vCJD Update (19/02/09)

Posted: Thursday, 19 February 2009

Update on the detection of vCJD in the post mortem of a UK man with haemophilia A

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