The HFA Getting Older with a bleeding disorder needs assessment report has now been published - read the report here.
is a priority project for Haemophilia Foundation Australia (HFA). HFA is committed to supporting active, independent and fulfilling lives for people in our bleeding disorders community. In line with HFA's vision, the project aims to:
- identify, understand and respond to the range of needs people with bleeding disorders may have as they grow older
- help find appropriate solutions for them and their partner/family or friends/carers.
The project commenced in February 2019. It involves:
- a needs assessment
- practical digital solutions such as an online hub or other digital options for targeted information and peer support
- publishing community-based education resources with focused information about ageing and self-management with a bleeding disorder.
An Advisory Group was established to provide guidance to HFA on responding to the ageing-related needs of the bleeding disorders community. The Advisory Group consists of representatives from various stakeholder groups in relevant key areas, including community members, expert health professionals, researchers in the area of ageing and other organisations with a common interest in complex health conditions.