SOCIAL, PSYCHOLOGICAL AND OTHER HEALTH RESEARCH
Social, psychological and multidisciplinary research often asks questions about a person’s experiences to explore ways to improve people’s health or wellbeing. Multidisciplinary research may look at several different aspects of a person’s life to get a broader perspective, for example, their physical health, social and personal life, how they feel emotionally.
Health services research assesses how well health services work for people and people’s preferences for different types and styles of services.
Some of these research projects will study large numbers of people, while others will undertake in-depth research with small numbers of people.
CURRENT AUSTRALIAN RESEARCH STUDIES
Haemophilia specific research
MOrPH (Modelling Optimal Prophylaxis in Haemophilia) study (Neuroscience Research Australia, The Children’s Hospital at Westmead, The George Institute for Global Health, the Royal Children’s Hospital, Melbourne) - surveys for young people 14-18 years and parents of children on prophylaxis for haemophilia to find out what they consider to be acceptable prophylactic schedules.
Ask your Haemophilia Centre for information on any other current studies
HIV or hepatitis C specific research
My health, our family (Centre for Social Research in Health, University of NSW - interviews with people with HIV, hep C or hep B and/or their family members to understand their roles and experience of treatment, management and prevention in the last few years
NEW - The Human Gene Therapy Survey (Australian National Univiersity) - investigating community attitudes towards and understanding of human gene therapy (closes 15 January 2018)
PARTICIPATING IN RESEARCH
Although information on specific research studies is listed on this web site for your information, this is not an endorsement of the research study by HFA.
Participating in a research study is voluntary. Before you take part in a research study, make sure you are satisfied that the study will be in your interests and that your health and privacy will be protected. All Australian human research projects must follow the guidelines made by the National Health & Medical Research Council and must have approval from a recognised Human Research Ethics Committee.
If you have concerns about a research project, you can make a complaint to the Human Research Ethics Committee that approved the study.
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