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Have Your Say

Have your say

Community consultation is an important part of the MyABDR project.

This will help to tailor the MyABDR app and web site so that they will work well for the people who will be using them.

It also helps us to understand the questions and concerns in the community so that we can address them.

Questions or comments?

Use the MyABDR feedback Form to send us your questions or comments about MyABDR.

National focus group for testing

There is ongoing user testing for the MyABDR app and web site, including testing proposed enhancements.

A group of people who home treat have joined a national focus group to test the MyABDR app and web site prototypes while they are in development.

Most people in the focus group test the prototypes on their mobile devices and computers at home.

Some have also joined small group face-to-face workshops with the MyABDR project team to do intensive testing and feedback.

If you are in Australia and treat at home for a bleeding disorder and are interested in participating in the national home testing focus group, contact Suzanne O'Callaghan at HFA – socallaghan@haemophilia.org.au or phone 1800 807 173.

Community survey

During July and August 2013 the MyABDR Project Team conducted an online community survey about how people currently – and would like to – record their home therapy, their mobile devices and home computers, and other questions about functionality.

The community survey was promoted widely and more than 80 people from around Australia responded. This has provided the development team with some very valuable information about what would be important about the MyABDR app and web site for community members:

  • “Ease of use and having accurate information available to my doctors and other trained staff”
  • “Security/confidentiality/software stability and consistency”
  • “I think a phone app would be brilliant, easy to access as always have phone on me. And also easy to pull up info on phone.”
  • “Make sure there is enough space to record any extra information or comments.”

Our thanks to those who participated in the survey for their thoughtful and informative answers.

Date last reviewed: 15 September 2021

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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