Haemophilia Foundation
Australia
Skip to content
Normal contrast
High contrast
MENU
Search for:
Login
donate
Today
Home
About Us
Who We Are
What We Do
Our Advocacy Work
Our Council
Meet the Staff
Our Supporters
Contact Us
About Bleeding Disorders
Latest Information
Fast Facts
FAQs
View All FAQs
Haemophilia
Newly diagnosed with haemophilia
Von Willebrand Disease
Women with Bleeding Disorders
The Female Factors
Self-advocacy for women
Haemophilia and carrying the gene
VWD in females
Personal stories
Other women's resources
Youth with Bleeding Disorders
Other Bleeding Disorders
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Acquired haemophilia
Gene Therapy
Hepatitis C & HIV
Hepatitis C
HFA hepatitis C strategy
Double Whammy Report
Getting It Right evaluation
Hep C Resources
Hep C Treatments
Hep C Personal Stories
Terry's Story 2010
Ben's Story 2010
Les's Story 2009
Telling others about hep C
World Hepatitis Day
HIV
HIV and Bleeding Disorders
Living with HIV
40 years of HIV - where to next?
Living with a Bleeding Disorder
Personal Stories
HFA YouTube Channel
Newly Diagnosed
Parents and Families
Accessing treatment - Leah's story
Ben – a father’s perspective
Mindi Palm - Living like a Swede
Poppa and Roman share a special bond
Growing up with a bleeding disorder
Youth
Tim - young person with haemophilia
Alan - telling others
Shauna - sharing her life experience living with a bleeding disorder
Stories by Young People
Women
Jane's story - genetic testing for haemophilia
Sharron - A woman with haemophilia, carrier, mother of a son with haemophilia, dad has haemophilia
Susie ~ Disclosure and telling others
Haemophilia - Do You Catch It?
Haemophilia - when your daughters bleed too
Haemophilia - All in the Family
Susie – living with type 1 von Willebrand disorder
Living with haemophilia
Growing Older with Haemophilia ~ Jason
Living with VWD
Living life actively with VWD
VWD – Down the generations
Susie – living with type 1 von Willebrand disorder
Shauna Adams – managing type 3 VWD
Connection & Peer Support
Connecting to others
Overcoming Challenges
Sharing Knowledge
Family & Community Camps
Getting Older
Mike - older person with haemophilia
Hepatitis C
Turning liver health around after hep C – Jake’s story
Clearing hep C as a child - John's story
Finally cured of hep C - Gavin's story
Women can have hep C too - Mary Jane's story
Hep C - I am cured [video]
Anth's treatment story
Simon's treatment story
Len's treatment story
Paul's treatment story
David's treatment story
Share your story
Disclosure
Travel
Travel tips
Getting Older Hub
Safety and Supply
Support & Services
State & Territory Foundations
Treatment Services
Getting Older Hub
Health & Wellbeing
Exercise, arthritis and balance
Bleeding problems
Pain
Mental wellbeing
Surgery and joint replacement
Working with your GP
Personal experiences
Services For Getting Older
Work & Finances
Concession cards
Financial planning and management
Working
Support
Recreation & Travel
Travel tips
Travel stories
Gavin's outback camping story
Your travel story?
Planning For The Future
Connect To Others
Personal experiences
Perry and living with VWD
Mike and getting older
Zev and Mike and staying active
Resilience - David and Zev and Mike
For Health Professionals
International Haemophilia Links
Other Links
ABDR & MyABDR
ABDR
What is MyABDR
Why use MyABDR?
MyABDR Updates
Privacy Consent
Background
Have Your Say
MyABDR Feedback
Youth
Factored In - youth website
Understanding Youth Needs
Youth News
Kids
Colouring in fun!
Livewire
Health Professional Groups
Awards
DCMEF
Publications
News
Information Resources
Bleeding Disorders
Haemophilia
Newly Diagnosed
Haemophilia booklets & fact sheets
Mild Haemophilia
Living with Mild Haemophilia
Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Sport
Gene therapy
Von Willebrand Disease
Women with Bleeding Disorders
Young women
Guide to haemophilia testing in women and girls
Haemophilia testing in women and girls - your questions
Telling others
Sport and exercise for young women
Young People
Getting older
Getting Older Hub
For health professionals
Hepatitis C
Hep C Fact Sheets
Personal Stories
For health professionals
Sport and Exercise
On the move with haemophilia
Welcome to On the Move with Haemophilia
About haemophilia
Exercise and haemophilia
Exercise and sports
Factors to consider
Warm ups and cool downs
Protection
Managing bleeds and injuries
Recovery and rehabilitation
Tips for parents, teachers, coaches and friends
Ordering HFA print publications
For Health Professionals
Nursing
Getting Older
Hepatitis C
National Haemophilia Journal
Videos & Webinars Library
Bleeding Disorders Awareness Month 2022
Travel Tips Webinar
New Therapies Webinar
Choosing or changing your career path Webinar
Your rights: superannuation and insurance webinar
Conference 2021
Adapting to Change - World Haemophilia Day 2021
Bleeding Disorders Awareness Week 2020
Youtube
Reports & Policy
Young People
Getting Older
Getting Older full report
Hepatitis C
Annual Reports
Promotional Resources
Awareness Newsletters
Research
Research Fund
Research Fund Grants
PROBE study
Getting Older Project
Participating in Research
Clinical Research
Social Research
Market Research
Questions to Ask
Complaints
Events & Conferences
Events
Bleeding Disorders Awareness Month
Resources & Fun Activities
Webinars
World Haemophilia Day 2023
Organise Your Own Event
Fundraise for Us
Past Events
Conferences
2023 Conference
Registration
Community Funding
Funding Form
Program
Social Activities
Poster Abstracts
Abstract Submission Form
Young People
Venue & Accomodation
Other Information
Mythbusting Animation Workshop
Sponsors
Conference Organisers
Health Professional Meetings
2021 Conference
Presentations
Plenary 1 - The changing world of bleeding disorders
Concurrent 1 - Managing bleeds under current new treatments
Concurrent 2 - Von Willebrand disease
Concurrent 3 - Sex, sexuality and intimacy
Concurrent 4 - Women and girls
Plenary 2 - Dealing with change
Plenary 3 - Pain
Concurrent 5 - Making the most of your health virtually
Concurrent 6 - Getting stronger safely
Concurrent 7 - Youth - challenges, taboos and myths
Concurrent 8 - Getting older
Plenary 4 - Where to from here?
Remembrance Service
Program
Sponsors
2019 Conference
Abstracts & Presentations
Program
Sponsors
2017 Conference
Abstracts & Presentations
Sponsors
Program
2015 Conference
Abstracts and Presentations
2011 Conference
Abstracts and Presentations
2009 Conference
Abstracts and Presentations
2007 Conference
Event Listing
Support Us
Donate
Donate Now
Ways to Give
A Reason to Give
Give Monthly
A Gift in your Will
Give in Celebration
Give in Memory
Fundraise for Us
COVID-19
Personal experiences
Sharing experiences is a great way to connect with other people with bleeding disorders. People going through the same thing as you can be very reassuring.
Sometimes having a bleeding disorder like haemophilia or VWD can leave you feeling a bit alone, particularly if you don't know anyone else who has the same condition.
Our community members share their experiences:
living with a bleeding disorder as they get older
what they would like out of life
what they have learned and tips and strategies that have worked for them.
Perry and living with VWD
Mike and getting older
Zev and Mike and staying active
Resilience - David and Zev and Mike
Date last reviewed: 2 March 2022