Sometimes it is important to connect with someone else who shares similar experiences.
Many state and territory Haemophilia Foundations have groups that meet regularly, bringing together people with bleeding disorders and also their partners, family and close friends.
Contact your local Foundation to find out more.
You can also speak to your Haemophilia Treatment Centre about opportunities to meet other people with bleeding disorders or partners and family.
Questions about how to manage your bleeding disorder or issues that are coming up for you? Contact your Haemophilia Treatment Centre (HTC). They can also refer you to other services to help you.
Counselling and other support
If you need help urgently, there are services available.
Lifeline – a 24 hr service for anyone having a personal crisis
T: 13 11 14
Beyond Blue – a 24 hr service, with a focus on anxiety and depression
T: 1300 22 4636
If you are concerned that you or someone you know is at immediate risk of suicide or self-harm - dial triple zero (000).
Counselling and other mental health options
Life is challenging and can be more so when living with a bleeding disorder, or if you are the partner or caring for someone with a bleeding disorder. When do you seek help? What kind of help is available? Psychologist Diana Harte gives an overview of the options.
Many of us experience feeling alone or separate from other people at times, even though we might be surrounded by people. How can we feel less lonely and more connected? Haemophilia Social Worker Nicoletta Crollini offers some strategies for connection.
Taking care of yourself as a carer
If you care for others, it is essential that you put aside time to care for yourself as well. Haemophilia Counsellor Kathryn Body gives some practical ideas on how to manage your self-care.
Date last reviewed: 23 June 2021
Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information.
This information may be printed or photocopied for educational purposes.