Youth Program


The vision of the program is:

For young people with haemophilia or a related bleeding disorder and their siblings to develop skills and confidence to make positive choices for the management of their health, care, recreation and personal relationships so that they can lead independent, active and fulfilling lives and participate actively in the bleeding disorders community

The new youth program is a result of the Beyond Prophylaxis project which was developed from a needs assessment that was conducted in 2012. It has now become the Youth Lead Connect Program.

The youth program looks at ways for young people affected by bleeding disorders to communicate with each other, share experiences and learn life skills.

Date last reviewed: 9 January 2019

Youth Lead Connect logo
Youth Lead Connect is an exciting HFA youth leadership and mentoring program to build education and life skills for young people. The program is designed to benefit both individuals and the bleeding disorders community:

  • For youth it helps personal development and build connections with others living with a bleeding disorder.
  • For the bleeding disorders community it develops and trains young community representatives. They will be able to participate in leadership and mentoring activities at local camps and events and make sure a youth voice is represented.

Youth Lead Connect currently has two different activities which are generally run in alternate years.

  1. The first is the Youth Lead Connect training programwhich allows young people to attend a training weekend to help them  build  leadership skills. These young people then return home where, with the support of their local foundation and HFA, they complete projects, known as Leadership Achievement Goals, to benefit the young people in their community and further develop their skills. Examples of past achievement goals include running social events to build connections amongst young people, volunteering at family camps, and sharing their experiences via Factored In.  Some previous graduates from this program have gone on to become members of their local foundation committees.

A date has not been set for the next YLC program yet, but keep an eye on Factored In for more information about this program, including eligibility criteria, how to apply, and examples of previous achievement goals. You can also email for more information.

  1. The other YLC activity is the Youth Canoe Journey. This is a challenge-based trip, with the aims of building up teamwork, organisation and leaderships skills. Participants will take an active role in the organisation of the event and it is hoped that this adventure will help them build the confidence to allow them to become more active in their communities.

The Youth Canoe Journey is an extension of the Youth Lead Connect Program and it aims to build education and life skills for young people. The program is designed to assist young people in their personal development and build connections with others living with a bleeding disorder. We hope to empower participants to work on their personal development and build connections with others living with a bleeding disorder. Participants will be challenged to work as a team, overcome obstacles, and develop initiative skills, as well as having fun. You can find more information on the trip, and how to apply over on Factored In

Date last reviewed: 9 January 2019

The Youth Working Group (YWG) is made up of young people from around Australia who have expressed interest in participating in this exciting national program. They bring their own experiences and what they know as individuals to the project rather than formally representing their state or territory. The youth working group is currently undertaking a review of the Factored In Website to ensure that the current content is up to date and relevant, and to discuss what content could be added in the future.

Date last reviewed: 9 January 2019

Youth moderators organised to assist with the Factored In website. Their role is to moderate user generated material and support ongoing development and further promotion. This system is designed to ensure that users remain safe online, and to ensure that conversations on factored in are respectful and informative.

Date last reviewed: 9 January 2019

If you are interested in more information about the HFA Youth Project and Youth Working Group, please contact us at: or
03 9885 7800
Toll free 1800 807 173.

Date last reviewed: 9 January 2019